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    Ethnography in Dementia Care Research: observations on ability and capacity

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    Publication date
    2016
    Author
    Ludwin, Katherine
    Capstick, Andrea
    Keyword
    Ethnography; Dementia care research; Mental capacity assessments; Ability and capacity; Ethical dilemmas; Social participation; Research participation
    Rights
    © 2017 SAGE. Reproduced in accordance with the publisher's self-archiving policy.
    Peer-Reviewed
    yes
    
    Metadata
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    Abstract
    This case outlines the rationale and methods used when carrying out ethnographic fieldwork in a care home environment with research participants who were living with a dementia diagnosis. Although concerns had been raised at ethics approval about the use of such methods – visual ethnography in particular – we found that there were ethical benefits for the participants whose capacity for research participation, and for social participation generally, was, in every case, higher than anticipated at the outset. By comparison we found that formal methods for assessing ability to give informed consent often appeared to create excess disability, and to exacerbate ill-being for people with dementia. The case draws on specific examples to show how issues related to methods and to ethical conduct of research are frequently intertwined, and should be considered together rather than in isolation.
    URI
    http://hdl.handle.net/10454/10921
    Version
    Published version
    Citation
    Ludwin K and Capstick A (2017) Ethnography in Dementia Care Research: observations on ability and capacity. SAGE Research Methods Cases - Ethnography. London: SAGE.
    Link to publisher’s version
    http://dx.doi.org/10.4135/9781526411006
    Type
    Case study
    Collections
    Health Studies Publications

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