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    RHAPSODY - Internet-based support for caregivers of people with young onset dementia: program design and methods of a pilot study

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    Oyebode_International_Psychogeriatrics.pdf (462.6Kb)
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    Publication date
    2016
    Author
    Kurz, A.
    Bakker, C.
    Bohm, M.
    Diehl-Schmid, J.
    Dubois, B.
    Ferreira, C.
    Gage, H.
    Graff, C.
    Hergueta, T.
    Jansen, S.
    Jones, B.
    Komar, A.
    de Mendonca, A.
    Metcalfe, A.
    Milecka, K.
    Millenaar, J.
    Orrung Wallin, A.
    Oyebode, Jan R.
    Schneider-Schelte, H.
    Saxl, S.
    de Vugt, M.
    Show allShow less
    Keyword
    Dementia; Young; Early; Onset; Caregiver; E-learning; Education; Guide
    Rights
    © Cambridge University Press 2016. Reproduced in accordance with the publisher's self-archiving policy.
    Peer-Reviewed
    Yes
    
    Metadata
    Show full item record
    Abstract
    Background: Young Onset Dementia (YOD), defined by first symptoms of cognitive or behavioral decline occurring before the age of 65 years, is relatively rare compared to dementia of later onset, but it is associated with diagnostic difficulty and heavy burden on affected individuals and their informal carers. Existing health and social care structures rarely meet the needs of YOD patients. Internet-based interventions are a novel format of delivering health-related education, counseling and support to this vulnerable yet underserved group. Methods: The RHAPSODY (Research to Assess Policies and Strategies for Dementia in the Young) project is a European initiative to improve care for people with YOD by providing an internet-based information and skill-building program for family carers. The e-learning program focuses on managing problem behaviors, dealing with role change, obtaining support and looking after oneself. It will be evaluated in a pilot study in three countries using a randomized unblinded design with a wait-list control group. Participants will be informal carers of people with dementia in Alzheimer’s disease or behavioral-variant Frontotemporal degeneration with an onset before the age of 65 years. The primary outcome will be caregiving self-efficacy after 6 weeks of program use. As secondary outcomes caregivers’ stress and burden, carer health-related quality of life, caring-related knowledge, patient problem behaviors and user satisfaction will be assessed. Program utilization will be monitored and a health-economic evaluation will also be performed. Conclusions: The RHAPSODY project will add to the evidence on the potential and limitations of a conveniently accessible, user-friendly and comprehensive internet-based intervention as an alternative for traditional forms of counseling and support in healthcare, aiming to optimize care and support for people with YOD and their informal caregivers.
    URI
    http://hdl.handle.net/10454/8620
    Version
    Accepted Manuscript
    Citation
    Kurz A, Bakker C and Bohm M et al (2016) RHAPSODY – Internet-based support for caregivers of people with young onset dementia: program design and methods of a pilot study. International Psychogeriatrics. 28(12): 2091-2099.
    Link to publisher’s version
    http://dx.doi.org/ 10.1017/S1041610216001186
    Type
    Article
    Collections
    Health Studies Publications

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