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    Development and psychometric evaluation of an observational coding system measuring person-centred care in spouses of people with dementia

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    Oyebode_International_Psychogeriatrics.pdf (316.7Kb)
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    Publication date
    2014-07-15
    Author
    Ellis-Gray, S.L.
    Riley, G.A.
    Oyebode, Jan R.
    Keyword
    Dementia; Spouses; Observation; Coding system; Person-centered care
    Peer-Reviewed
    yes
    
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    Abstract
    Background: The notion of person-centered care has been important in investigating relationships between people with dementia and paid carers, and measures are available to assess this. It has been suggested that person-centered care may be a useful construct to apply to understand family-care relationships. However, no measures of person-centered care in this context exist. The study aimed to develop an observational measure of person-centered care for this purpose. Method: First, a coding system incorporating a range of behaviors that could be considered person-centered or non-person-centered was constructed. Examples included a code relating to whether the person with dementia was involved in planning a task, and a code relating to how the spouse responded to confusion/distress. Second, 11 couples, where one partner had a dementia, were recruited and videotaped cooperating on an everyday task. The system was applied to the care-giving spouse's behaviors, labeling examples of behavior as person-centered or non-person-centered. The final step involved assessing the inter-rater reliability of the system. Results: The system captured nine categories of behavior, which were each divided into person-centered and non-person-centered types. The system had good reliability (Cohen's κ coefficients were: 0.65 for category and whether behaviors needed to be placed in a category; 0.81 for category excluding the decision about whether behaviors needed to be placed in a category; and 0.79 in relation to whether behaviors were person-centered or non-person-centered.) Conclusions: Although the small sample size limits the implications of the results, the system is a promising quantitative measure of spousal person-centered care.
    URI
    http://hdl.handle.net/10454/7396
    Version
    Accepted Manuscript
    Citation
    Ellis-Gray S, Riley G and Oyebode J (2014) Development and psychometric evaluation of an observational coding system measuring person-centred care in spouses of people with dementia. International Psychogeriatrics. 26(11): 1885-1895.
    Link to publisher’s version
    http://dx.doi.org/10.1017/S1041610214001215
    Type
    Article
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    Health Studies Publications

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