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dc.contributor.authorOyebode, Jan*
dc.date.accessioned2013-11-11T17:39:49Z
dc.date.available2013-11-11T17:39:49Z
dc.date.issued2013
dc.identifier.citationOyebode JR, Bradley P and Allen JL (2013) Relatives' Experiences of Frontal-Variant Frontotemporal Dementia. Qualitative Health Research. 23(2): 156-166.en_US
dc.identifier.urihttp://hdl.handle.net/10454/5662
dc.description.abstractIn this article we address how relatives of people with frontal-variant frontotemporal dementia (fvFTD) experience the illness and how it impacts their lives. We interviewed 6 participants and carried out interpretative phenomenological analysis. We report on 11 themes that reflect distinctive challenges. Five themes relate to witnessing bizarre and strange changes: changed appetites and drives, loss of planning ability, loss of inhibition leading to social embarrassment, risky behavior, and communication problems. Four relate to managing these changes and two to the impact on the person and his or her relationships. Relatives must live with unusual changes in the person with fvFTD and the stigma this carries in social settings. They learn to act assertively for their relatives and put effort into promoting quality of life, using strategies adapted for fvFTD. Relatives grieve the loss of the person with fvFTD and their mutual relationship, but nonetheless find sources of solace and hope.en_US
dc.language.isoenen_US
dc.subjectDementiaen_US
dc.subject; Familiesen_US
dc.subject; Primary partneren_US
dc.subject; Caregivingen_US
dc.subject; Interpretative phenomenological analysis; IPAen_US
dc.subject; Qualitative analysisen_US
dc.subject; Relationshipsen_US
dc.subject; Frontal-variant frontotemporal dementia; fvFTDen_US
dc.titleRelatives' Experiences of Frontal-Variant Frontotemporal Dementiaen_US
dc.status.refereedyesen_US
dc.typeArticleen_US
dc.type.versionpublished version paperen_US
dc.identifier.doihttp://doi.org/10.1177/1049732312466294
refterms.dateFOA2018-07-19T10:33:15Z


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