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    Caring for persons with Parkinson's disease in care homes: Perceptions of residents and their close relatives, and an associated review of residents' care plans.

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    Publication date
    01/04/2009
    Author
    Armitage, Gerry R.
    Adams, Jenny E.
    Newell, Robert J.
    Coates, David
    Ziegler, Lucy
    Hodgson, Ian J.
    Keyword
    Parkins's Disease
    Residential care
    Care homes
    Users' perspectives
    Relatives' perspectives
    Effectiveness of care
    Peer-Reviewed
    yes
    
    Metadata
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    Abstract
    Through qualitative in-depth interviews, we collected the views of persons with Parkinson¿s disease (pwPD) and their close relatives in care homes to establish their collective views of the effectiveness of care. We also reviewed the corresponding care plans. Drawing on these two forms of data collection, we compared similarities and differences between the qualitative interview data and the care plan analysis to elaborate on the experience of residential care for pwPD. Close relatives of care home residents can be a fruitful source of information for care home staff, throughout the care planning process, especially in relation to the specific needs of a pwPD. Although health and social policy advocate active collaboration between people with long-term conditions, their families, and their formal carers, there is limited evidence of such collaboration in the data examined here. There is an apparent shortfall in the knowledge and understanding of PD among care home staff. There are important pragmatic (e.g. drug administration) as well as psycho-social reasons for flexibility in routine care provision to meet the dynamic needs of pwPD. The findings here support the need for further, larger scale research into the quality of care for pwPD who are care home residents.
    URI
    http://hdl.handle.net/10454/4516
    Citation
    Armitage, G. R., Adams, J., Newell, R. J., Coates, D., Zeigler, L. and Hodgson, I. (2009). Caring for persons with Parkinson's disease in care homes: perceptions of residents and their close relatives, and an associated review of residents' care plans. Journal of Research in Nursing. Vol. 4, No. 4, pp. 333-48.
    Link to publisher’s version
    http://dx.doi.org/10.1177/1744987109106694
    Type
    Article
    Collections
    Health Studies Publications

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