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    Including older people with dementia in research:challenges and strategies.

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    Publication date
    2003
    Author
    Hubbard, G.
    Downs, Murna G.
    Tester, S.
    Keyword
    Dementia
    Elderly people
    Interaction
    Care Homes
    Peer-Reviewed
    Yes
    
    Metadata
    Show full item record
    Abstract
    This paper examines key challenges and strategies for including older people with dementia in an ethnographic study of quality of life in institutional care settings. The methods of interview and observation are described in relation to meeting four research challenges: verbal communication impairment, memory loss, decision-making capacity, and emotional disposition. A range of strategies for privileging the voice of the person with dementia is recommended which include: using different methods bespoke to each person with dementia; greater flexibility and time; preliminary meetings with the person with dementia; discussions with formal and informal carers; and research training. The researchers also conclude that the use of observation and interview are 'meaning-making occasions' which are qualitatively different but equally valuable for understanding quality of life in care settings.
    URI
    http://hdl.handle.net/10454/3985
    Version
    No full-text available in the repository
    Citation
    Hubbard, G., Downs, M.G. and Tester, S, (2003). Including older people with dementia in research:challenges and strategies. Aging & Mental Health. Vol. 7, No. 5, pp. 351-362.
    Link to publisher’s version
    http://dx.doi.org/10.1080/1360786031000150685
    Type
    Article
    Collections
    Health Studies Publications

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