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    South Asians and epilepsy: Exploring health experiences, needs and beliefs of communities in the north of England.

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    Publication date
    2005
    Author
    Ismail, Hanif
    Wright, J.
    Rhodes, P.J.
    Small, Neil A.
    Jacoby, A.
    Keyword
    South Asians
    Epilepsy
    Traditional therapies
    Service provision
    North of England
    Peer-Reviewed
    Yes
    
    Metadata
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    Abstract
    Purpose: To examine the beliefs and experiences of South Asians with epilepsy and the extent of provision of appropriate information and accessible services for them by health professionals. Methods: Qualitative interviews with 30 South Asians with epilepsy, 16 carers and 10 health professionals. In addition, two focus groups were held with 16 South Asians without epilepsy recruited from community centers. The interview sample was divided by religious groupings (Hindus, Sikhs and Muslims). Fieldwork was conducted in Bradford and Leeds (England Results: Beliefs that epilepsy is caused by spirit possession (Muslims) or attributable to sins committed in a past life (Sikhs and Hindus) were reported as being widely held among South Asians living both in the UK and the Indian subcontinent, although few informants themselves subscribed to such views. Compliance with conventional medication was high; however, those who experienced seizures most often were most likely to turn to traditional South Asian therapies. Most informants used both treatments simultaneously. The main issues regarding the provision of services were: lack of appropriate information and advice; language and communication barriers; problems in interaction with health professionals. Also discussed were the potential merits of attending support groups. Greatest dissatisfaction was expressed in relation to primary care, whereas the highest praise was reserved for specialist epilepsy nurses. Conclusions: Our findings show both similarities and differences between participants¿ experiences, where gender, age or other aspects of personal biography can be as important as religion, culture or country of origin. Furthermore, the impact of being diagnosed with epilepsy can be exacerbated by structural impediments to accessing information and appropriate services.
    URI
    http://hdl.handle.net/10454/3596
    Version
    No full-text available in the repository
    Citation
    Ismail, H., Wright, J., Rhodes, P. and Small, N.A. et al. (2005). South Asians and epilepsy: Exploring health experiences, needs and beliefs of communities in the north of England. Seizure. Vol. 14, No. 7, pp. 497-503.
    Link to publisher’s version
    http://dx.doi.org/10.1016/j.seizure.2005.08.006
    Type
    Article
    Collections
    Health Studies Publications

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