• Participatory Video and Situated Ethics: Avoiding Disablism

      Capstick, Andrea (2012)
      This chapter considers the adaptations which may need to be made to participatory video in order for it to be accessible to people whose marginalized status stems from a label of 'disability', whether this is physical, sensory or cognitive. To date there has been an ill fit between the emancipatory principles of participatory video, and the technical rationality (Schön, 1996) and hypercognitivity (Post, 2000) of its methods. Because participatory video is intended to enable marginalized, socially excluded and unheard groups of people to make films which reflect their own interests and concerns (Robertson & Shaw, 1997), adaptations to allow people with disabilities to take part would appear vital from an ethical point of view. Yet ethical issues in general do not appear to have been given sufficient consideration in the participatory video literature to date, and there is little evidence of engagement with emergent areas of debate such as the ethics of visual research (Prosser, 2008) and the importance of working in solidarity with people with reduced or fluctuating mental capacity (Nuffield Council for Bioethics, 2009).
    • You get old, you get breathless, and you die: chronic obstructive pulmonary disease in Barnsley, UK

      Small, Neil A.; Gardiner, C.; Barnes, S.; Gott, M.; Halpin, D.; Payne, S.; Seamark, D. (2012)
      We report patients, family members and health professionals' experiences of Chronic Obstructive Pulmonary Disease (COPD) in Barnsley, northern England. A widespread belief that having "bad lungs" is part of normal ageing shapes everyday experience in this former mining town. People with COPD, and their families, link its cause to the areas industrial past and are sceptical of a medical orthodoxy that attributes cause to smoking. They doubt doctors' objectivity. Encouraging uptake of care, promoting smoking cessation, and developing care planning would be enhanced by engaging with the significance of place in the social narrative of health evident in this town.