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dc.contributor.authorVictor, C.R.
dc.contributor.authorGamble, L.D.
dc.contributor.authorPentecost, C.
dc.contributor.authorQuinn, Catherine
dc.contributor.authorCharlwood, C.
dc.contributor.authorMatthews, F.E.
dc.contributor.authorClare, L.
dc.date.accessioned2024-01-18T12:21:44Z
dc.date.accessioned2024-01-29T15:29:03Z
dc.date.available2024-01-18T12:21:44Z
dc.date.available2024-01-29T15:29:03Z
dc.date.issued2024-01
dc.identifier.citationVictor CR, Gamble LD, Pentecost C et al (2024) Living well with dementia: An exploratory matched analysis of minority ethnic and white people with dementia and carers participating in the IDEAL programme. International Journal of Geriatric Psychiatry. 39(1): e6048.en_US
dc.identifier.urihttp://hdl.handle.net/10454/19785
dc.descriptionYesen_US
dc.description.abstractThe increasing heterogeneity of the population of older people is reflected in an increasing number of people with dementia and carers drawn from minority ethnic groups. Data from the IDEAL study are used to compare indices of 'living well' among people with dementia and carers from ethnic minority groups with matched white peers. We used an exploratory cross-sectional case-control design to compare 'living well' for people with dementia and carers from minority ethnic and white groups. Measures for both groups were quality of life, life satisfaction, wellbeing, loneliness, and social isolation and, for carers, stress, relationship quality, role captivity and caring competence. The sample of people with dementia consisted of 20 minority ethnic and 60 white participants and for carers 15 and 45 respectively. People with dementia from minority ethnic groups had poorer quality of life (-4.74, 95% CI: -7.98 to -1.50) and higher loneliness (1.72, 95% CI: 0.78-2.66) whilst minority ethnic carers had higher stress (8.17, 95% CI: 1.72-14.63) and role captivity (2.00, 95% CI: 0.43-3.57) and lower relationship quality (-9.86, 95% CI: -14.24 to -5.48) than their white peers. Our exploratory study suggests that people with dementia from minority ethnic groups experience lower quality of life and carers experience higher stress and role captivity and lower relationship quality than their white peers. Confirmatory research with larger samples is required to facilitate analysis of the experiences of specific minority ethnic groups and examine the factors contributing to these disadvantages.en_US
dc.description.sponsorshipEconomic and Social Research Council. National Institute for Health and Care Research. Grant Number: ES/L001853/2en_US
dc.language.isoenen_US
dc.rights© 2024 The Authors. International Journal of Geriatric Psychiatry published by John Wiley & Sons Ltd. This is an open access article under the terms of the Creative Commons Attribution License, which permits use, distribution and reproduction in any medium, provided the original work is properly cited.en_US
dc.subjectCarersen_US
dc.subjectDementiaen_US
dc.subjectMinority ethnic populationen_US
dc.subjectQuality of lifeen_US
dc.titleLiving well with dementia: An exploratory matched analysis of minority ethnic and white people with dementia and carers participating in the IDEAL programmeen_US
dc.status.refereedYesen_US
dc.date.Accepted2023-12-14
dc.date.application2024-01-05
dc.typeArticleen_US
dc.type.versionPublished versionen_US
dc.identifier.doihttps://doi.org/10.1002/gps.6048
dc.rights.licenseCC-BYen_US
dc.date.updated2024-01-18T12:21:46Z
refterms.dateFOA2024-01-29T15:30:09Z
dc.openaccess.statusopenAccessen_US


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