Navigating the COVID-19 pandemic two years on: experiences of carers of people with dementia from the British IDEAL cohort

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Publication date
2024-11Author
Collins, R.Dawson, E.
Pentecost, C.
Stapley, S.
Quinn, Catherine

Charlwood, C.
Allan, L.
Victor, C.
Clare, L.
Rights
© Policy Press 2023. This is a post-peer-review, pre-copy edited version of an article published in International Journal of Care and Caring. The definitive publisher-authenticated version [Collins R, Dawson E, Pentecost C et al (2024) Navigating the COVID-19 pandemic two years on: experiences of carers of people with dementia from the British IDEAL cohort. International Journal of Care and Caring. 8(4): 600-621.] is available online at: https://doi.org/10.1332/239788223X16893442145108Peer-Reviewed
YesOpen Access status
openAccessAccepted for publication
2023-08
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Show full item recordAbstract
We explored carers experiences during the COVID-19 pandemic in England to identify long-term impacts and implications, and to suggest future support for caregivers. Data were collected during COVID-19 rapid response studies (IDEAL-CDI; INCLUDE) from carers participating in a British longitudinal cohort study (IDEAL). Semi-structured interview data were compared to their accounts from previous interviews conducted during the first 18 months of the pandemic. There was indication of some return to pre-pandemic lifestyles but without appropriate support carers risked reaching crisis point. Evidence points to a need for assessment and management of support needs to ensure well-being and sustainable dementia caregiving.Version
Accepted manuscriptCitation
Collins R, Dawson E, Pentecost C et al (2024) Navigating the COVID-19 pandemic two years on: experiences of carers of people with dementia from the British IDEAL cohort. International Journal of Care and Caring. 8(4): 600-621.Link to Version of Record
https://doi.org/10.1332/239788223X16893442145108Type
Articleae974a485f413a2113503eed53cd6c53
https://doi.org/10.1332/239788223X16893442145108