Caring beyond capacity during the COVID-19 pandemic: resilience and family carers of people with dementia from the IDEAL cohort

Stapley, S.; Pentecost, C.; Collins, R.; Quinn, Catherine; Dawson, E.; Thom, J.M.; Clare, L.

dc.contributor.author	Stapley, S.
dc.contributor.author	Pentecost, C.
dc.contributor.author	Collins, R.
dc.contributor.author	Quinn, Catherine
dc.contributor.author	Dawson, E.
dc.contributor.author	Thom, J.M.
dc.contributor.author	Clare, L.
dc.date.accessioned	2023-08-31T16:07:46Z
dc.date.accessioned	2023-09-13T14:29:21Z
dc.date.available	2023-08-31T16:07:46Z
dc.date.available	2023-09-13T14:29:21Z
dc.date.issued	2024-05
dc.identifier.citation	Stapley S, Pentecost C, Collins R et al (2024) 'Caring beyond capacity' during the COVID-19 pandemic: resilience and family carers of people with dementia from the IDEAL cohort. International Journal of Care and Caring. 8(2): 246-263.
dc.identifier.uri	http://hdl.handle.net/10454/19573
dc.description	Yes
dc.description.abstract	Family carers of people with dementia have reported increased caring demands during the COVID-19 pandemic. The aim of this qualitative study was to explore seven family carers’ accounts of dementia caregiving one year into the COVID-19 pandemic in England in relation to carer resilience. Themes described the complex challenges of caring during the pandemic, with interviewees burned out and ‘caring beyond capacity’ due to unmet needs within the caring role, therein highlighting the limitations of building individual resilience only. Timely practical support for carers is essential to protect their well-being and to ward against the potential consequences of carer burnout.
dc.description.sponsorship	Economic and Social Research Council (ESRC) grant ES/V004964/1. Economic and Social Research Council (ESRC) and the National Institute for Health and Care Research (NIHR) grant ES/L001853/2. Alzheimer’s Society, grant number 348, AS-PR2-16-001.
dc.language.iso	en	en
dc.rights	� Policy Press 2023. This is a post-peer-review, pre-copy edited version of an article published in International Journal of Care and Caring. The definitive publisher-authenticated version Stapley S, Pentecost C, Collins R et al (2024) 'Caring beyond capacity' during the COVID-19 pandemic: resilience and family carers of people with dementia from the IDEAL cohort. International Journal of Care and Caring. 8(2): 246-263. is available online at: https://doi.org/10.1332/239788221X16819328227036.
dc.subject	Alzheimer's
dc.subject	Caregiving
dc.subject	COVID-19
dc.subject	Qualitative
dc.title	Caring beyond capacity during the COVID-19 pandemic: resilience and family carers of people with dementia from the IDEAL cohort
dc.status.refereed	Yes
dc.date.application	2023-05-22
dc.type	Article
dc.type.version	Accepted manuscript
dc.identifier.doi	https://doi.org/10.1332/239788221X16819328227036
dc.rights.license	Unspecified
dc.date.updated	2023-08-31T16:07:47Z
refterms.dateFOA	2023-09-13T14:33:14Z
dc.openaccess.status	embargoedAccess
dc.date.accepted	2023-05