Caring beyond capacity’ during the COVID-19 pandemic: resilience and family carers of people with dementia from the IDEAL cohort

Stapley, S.; Pentecost, C.; Collins, R.; Quinn, Catherine; Dawson, E.; Thom, J.M.; Clare, L.

dc.contributor.author	Stapley, S.
dc.contributor.author	Pentecost, C.
dc.contributor.author	Collins, R.
dc.contributor.author	Quinn, Catherine
dc.contributor.author	Dawson, E.
dc.contributor.author	Thom, J.M.
dc.contributor.author	Clare, L.
dc.date.accessioned	2023-08-31T16:07:46Z
dc.date.accessioned	2023-09-13T14:29:21Z
dc.date.available	2023-08-31T16:07:46Z
dc.date.available	2023-09-13T14:29:21Z
dc.date.issued	2023
dc.identifier.citation	Stapley S, Pentecost C, Collins R et al (2023) 'Caring beyond capacity’ during the COVID-19 pandemic: resilience and family carers of people with dementia from the IDEAL cohort. International Journal of Care and Caring. Accepted for Publication.	en_US
dc.identifier.uri	http://hdl.handle.net/10454/19573
dc.description	Yes	en_US
dc.description.abstract	Family carers of people with dementia have reported increased caring demands during the COVID-19 pandemic. The aim of this qualitative study was to explore seven family carers’ accounts of dementia caregiving one year into the COVID-19 pandemic in England in relation to carer resilience. Themes described the complex challenges of caring during the pandemic, with interviewees burned out and ‘caring beyond capacity’ due to unmet needs within the caring role, therein highlighting the limitations of building individual resilience only. Timely practical support for carers is essential to protect their well-being and to ward against the potential consequences of carer burnout.	en_US
dc.description.sponsorship	Economic and Social Research Council (ESRC) grant ES/V004964/1. Economic and Social Research Council (ESRC) and the National Institute for Health and Care Research (NIHR) grant ES/L001853/2. Alzheimer’s Society, grant number 348, AS-PR2-16-001.	en_US
dc.language.iso	en	en_US
dc.relation.isreferencedby	https://doi.org/10.1332/239788221X16819328227036	en_US
dc.rights	© Policy Press 2023. This is a post-peer-review, pre-copy edited version of an article published in International Journal of Care and Caring. The definitive publisher-authenticated version [Stapley S, Pentecost C, Collins R et al (2023) 'Caring beyond capacity’ during the COVID-19 pandemic: resilience and family carers of people with dementia from the IDEAL cohort. International Journal of Care and Caring. Accepted for Publication.] is available online at: https://doi.org/10.1332/239788221X16819328227036.	en_US
dc.subject	Alzheimer's	en_US
dc.subject	Caregiving	en_US
dc.subject	COVID-19	en_US
dc.subject	Qualitative	en_US
dc.title	Caring beyond capacity’ during the COVID-19 pandemic: resilience and family carers of people with dementia from the IDEAL cohort	en_US
dc.status.refereed	Yes	en_US
dc.date.Accepted	2023-05
dc.date.application	2023-05-22
dc.type	Article	en_US
dc.date.EndofEmbargo	2024-05-22
dc.type.version	Accepted manuscript	en_US
dc.description.publicnotes	The full-text of this article will be released for public view at the end of the publisher embargo on 22 May 2024.
dc.rights.license	Unspecified	en_US
dc.date.updated	2023-08-31T16:07:47Z
refterms.dateFOA	2023-09-13T14:33:14Z
dc.openaccess.status	embargoedAccess	en_US