Caring beyond capacity’ during the COVID-19 pandemic: resilience and family carers of people with dementia from the IDEAL cohort

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Publication date
2023
End of Embargo
2024-05-22
Author
Stapley, S.
Pentecost, C.
Collins, R.
Quinn, Catherine
Dawson, E.
Thom, J.M.
Clare, L.
Keyword
Alzheimer's
Caregiving
COVID-19
Qualitative
Rights
© Policy Press 2023. This is a post-peer-review, pre-copy edited version of an article published in International Journal of Care and Caring. The definitive publisher-authenticated version [Stapley S, Pentecost C, Collins R et al (2023) 'Caring beyond capacity’ during the COVID-19 pandemic: resilience and family carers of people with dementia from the IDEAL cohort. International Journal of Care and Caring. Accepted for Publication.] is available online at: https://doi.org/10.1332/239788221X16819328227036.
Peer-Reviewed
Yes
Open Access status
embargoedAccess

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Abstract
Family carers of people with dementia have reported increased caring demands during the COVID-19 pandemic. The aim of this qualitative study was to explore seven family carers’ accounts of dementia caregiving one year into the COVID-19 pandemic in England in relation to carer resilience. Themes described the complex challenges of caring during the pandemic, with interviewees burned out and ‘caring beyond capacity’ due to unmet needs within the caring role, therein highlighting the limitations of building individual resilience only. Timely practical support for carers is essential to protect their well-being and to ward against the potential consequences of carer burnout.
URI
http://hdl.handle.net/10454/19573
Version
Accepted manuscript
Citation
Stapley S, Pentecost C, Collins R et al (2023) 'Caring beyond capacity’ during the COVID-19 pandemic: resilience and family carers of people with dementia from the IDEAL cohort. International Journal of Care and Caring. Accepted for Publication.
Link to publisher’s version
https://doi.org/10.1332/239788221X16819328227036
Type
Article
Notes
The full-text of this article will be released for public view at the end of the publisher embargo on 22 May 2024.
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