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    Navigating the coronavirus pandemic 2 years on: Experiences of people with dementia from the British IDEAL cohort.

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    Publication date
    2023-02
    Author
    Dawson, E.
    Collins, R.
    Pentecost, C.
    Stapley, S.
    Quinn, Catherine
    Charlwood, C.
    Victor, C.
    Clare, L.
    Keyword
    Alzheimer’s disease
    Qualitative study
    Coping
    Isolation
    Dementia
    COVID (Coronavirus)
    Pandemic
    Support
    Experiences
    Rights
    © 2023 The Authors. Published by SAGE. This article is distributed under the terms of the Creative Commons Attribution 4.0 License (https://creativecommons.org/licenses/by/4.0/) which permits any use, reproduction and distribution of the work without further permission provided the original work is attributed as specified on the SAGE and Open Access page (https://us.sagepub.com/en-us/nam/open-access-at-sage).
    Peer-Reviewed
    Yes
    Open Access status
    openAccess
    
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    Abstract
    People with dementia have been affected in unique ways during the COVID-19 pandemic. It is not known whether the impact of the pandemic has changed with time or with the changes in social restrictions. This study explored how experiences of coping with the effects of the pandemic in the UK changed over time. We conducted semi-structured interviews with people with dementia living in the community in England and Wales who had taken part in a qualitative interview at an earlier stage of the pandemic. We applied framework analysis to identify themes and compared these with interviewees' previous accounts. Nine people aged between 51 and 89 years were interviewed; four were female and five had early onset dementia. We identified three themes: 1. Navigating a changing world: Living with coronavirus; 2. A 'downward spiral': Managing advancing dementia; and 3. Availability, accessibility, and suitability of support. Findings reflect participants' ongoing caution about re-emerging from social restrictions to resume valued activities, and how this led to coping behaviours to minimise the impact on wellbeing in the absence of formal support and services. Despite easing of restrictions across the UK, the negative impact of the coronavirus pandemic on people with dementia continues. Whilst individuals and services have adapted to some of the challenges, there is now an opportunity to rebuild support networks and services to ensure people with dementia are suitably advised, supported and socially engaged to allow them to live as well as possible.
    URI
    http://hdl.handle.net/10454/19359
    Version
    Published version
    Citation
    Dawson E, Collins R, Pentecost C, et al. (2023) Navigating the coronavirus pandemic 2 years on: Experiences of people with dementia from the British IDEAL cohort. Dementia. Accepted for publication.
    Link to publisher’s version
    https://doi.org/10.1177/14713012231158215
    Type
    Article
    Collections
    Health Studies Publications

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