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    Living with dementia during the COVID-19 pandemic: insights into identity from the IDEAL cohort

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    Quinn_et_al_Ageing_&_Society_2023 (348.6Kb)
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    Publication date
    2023
    Author
    Stapley, S.
    Pentecost, C.
    Collins, R.
    Quinn, Catherine
    Dawson, E.
    Morris, R.
    Sabatini, S.
    Thom, J.
    Clare, L.
    Keyword
    Dementia
    Alzheimer's
    COVID-19
    Pandemic
    Coronavirus
    Qualitative
    Identity
    Occupation
    Rights
    © The Author(s), 2023. Published by Cambridge University Press. This is an Open Access article, distributed under the terms of the Creative Commons Attribution licence (http://creativecommons.org/licenses/by/4.0/), which permits unrestricted re-use, distribution and reproduction, provided the original article is properly cited.
    Peer-Reviewed
    Yes
    Open Access status
    openAccess
    
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    Abstract
    The continuing COVID-19 pandemic and social restrictions have impacted on the cognitive decline and mental health of people with dementia. Social isolation and loss of activities due to social restrictions may also have implications as to sense of identity for people with dementia. As part of the INCLUDE (Identifying and Mitigating the Individual and Dyadic Impact of COVID-19 and Life Under Physical Distancing on People with Dementia and Carers) component of the IDEAL (Improving the Experience of Dementia and Enhancing Active Life) cohort study, the overall aim of this subtle realist qualitative study was to explore the perspectives of people with dementia on living through the COVID-19 pandemic within the context of the ‘post-vaccine’ period and the national lockdowns in England and Wales; and to determine perceived challenges to and facilitators of ‘living well’ during the COVID-19 pandemic and beyond as restrictions were eased. In addition, the study findings are considered in relation to understandings of identity in dementia which the broader accounts of living through the pandemic have highlighted. Seven people with mild-to-moderate dementia were interviewed and themes were derived using framework analysis. Themes suggest interviewees' stoic acceptance of the pandemic and social restrictions but also fear of decline related to the temporality of their condition as well as loss of self-confidence to re-engage with the world. Interviewees managed threats to social identity by striving to maintain social and emotional connections, where the importance of a shared, social identity, particularly for people with young-onset dementia, was also apparent. Unlike in previous studies during the pandemic, the relevance of occupation for identity was observed, where maintaining previous or new activities or occupations was important to facilitate identity as well as to keep a sense of purpose. Therefore, as well as supporting people with dementia as the pandemic eases, future research into occupation and identity in dementia is of potential value.
    URI
    http://hdl.handle.net/10454/19340
    Version
    Published version
    Citation
    Stapley S, Pentecost C, Collins R et al (2023) Living with dementia during the COVID-19 pandemic: insights into identity from the IDEAL cohort. Ageing and Society. Accepted for Publication.
    Link to publisher’s version
    https://doi.org/10.1017/S0144686X22001350
    Type
    Article
    Collections
    Health Studies Publications

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