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    A comparison of well-being of carers of people with dementia and their ability to manage before and during the COVID-19 pandemic: findings from the IDEAL study

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    Accepted manuscript (725.1Kb)
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    Publication date
    2022
    Author
    Gamble, L.D.
    Parker, S.
    Quinn, Catherine
    Bennett, H.Q.
    Martyr, A.
    Sabatini, S.
    Pentecost, C.
    Collins, R.
    Dawson, E.
    Hunt, A.
    Allan, L.
    Burns, A.
    Litherland, R.
    Victor, C.
    Matthews, F.E.
    Clare, L.
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    Keyword
    Alzheimer’s disease
    Competence
    Coping
    Quality of life
    Role captivity
    Well-being
    Rights
    © 2022 IOS Press. Reproduced in accordance with the publisher's self-archiving policy. The final publication is available at IOS Press through https://doi.org/10.3233/JAD-220221.
    Peer-Reviewed
    Yes
    Open Access status
    openAccess
    
    Metadata
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    Abstract
    Background: Social restriction measures imposed to curb the spread of COVID-19 in the United Kingdom impacted on carers of people with dementia, limiting access to support services and increasing perceived burden of caring. Few studies have compared data collected both during and before the pandemic to examine the effect of these changes. Objective: To explore whether the COVID-19 pandemic affected the well-being of carers of people with dementia living in the community, and their ability to cope with their caring responsibilities. Methods: Analysis was conducted on two groups of carers who were enrolled in the IDEAL programme; the ‘pre-pandemic group’ (n = 312), assessed at two time points prior to the pandemic, and the ‘pandemic group’, assessed prior to and several months into the pandemic (n = 156). For the pre-pandemic group, carers were matched 2:1 to carers in the pandemic group on certain characteristics. Differences in change over time between the two groups on self-reported well-being, quality of life, coping, perceived competence, and role captivity, were investigated using mixed effect modelling. Results: Compared to the pre-pandemic group, those in the pandemic group appeared to cope better and had more stable self-rated competency and role captivity. They did not differ in terms of well-being or quality of life. Conclusion: Despite reports of negative impacts on carers early in the pandemic, the findings suggest the pandemic had little negative longer-term impact on carers of people with dementia, and in fact they appeared to have a more positive attitude towards coping several months into the pandemic.
    URI
    http://hdl.handle.net/10454/19115
    Version
    Accepted version
    Citation
    Gamble LD, Parker S, Quinn C et al (2022) A comparison of well-being of carers of people with dementia and their ability to manage before and during the COVID-19 pandemic: findings from the IDEAL study. Journal of Alzheimer's Disease. 88(2): 679-692.
    Link to publisher’s version
    https://doi.org/10.3233/JAD-220221
    Type
    Article
    Collections
    Health Studies Publications

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