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dc.contributor.authorQuinn, Catherine
dc.contributor.authorToms, G.
dc.contributor.authorRippon, I.
dc.contributor.authorNelis, S.M.
dc.contributor.authorHenderson, C.
dc.contributor.authorMorris, R.G.
dc.contributor.authorRusted, J.M.
dc.contributor.authorThom, J.M.
dc.contributor.authorvan den Heuvel, E.
dc.contributor.authorVictor, C.
dc.contributor.authorClare, L.
dc.date.accessioned2022-07-01T10:46:22Z
dc.date.accessioned2022-07-04T10:42:51Z
dc.date.available2022-07-01T10:46:22Z
dc.date.available2022-07-04T10:42:51Z
dc.date.issued2024-05
dc.identifier.citationQuinn C, Toms G, Rippon I et al (2024) Positive experiences in dementia care-giving: findings from the IDEAL programme. Ageing & Society. 44(5): 1010-1030.
dc.identifier.urihttp://hdl.handle.net/10454/19043
dc.descriptionYes
dc.description.abstractThere is a growing evidence base that identifying positive experiences in providing care can have a beneficial influence on carer wellbeing. However, there is a need to better understand what carers identify as the positive aspects of care-giving. The aim of this study is to explore the satisfying aspects of providing care to people with dementia. This study utilised Time 1 data from 1,277 carers of people in the mild-to-moderate stages of dementia taking part in the IDEAL (Improving the experience of Dementia and Enhancing Active Life) cohort study. Responses from 900 carers who answered the open-ended question ‘What is your greatest satisfaction in caring for your relative/friend?’ were analysed using thematic analysis. From the responses, 839 carers detailed satisfactions. Eight themes were identified, pertaining to three groups of beneficiaries: carers, people with dementia and the dyad. Perceived benefits for carers included identifying aspects of personal growth, seeing glimpses of the person, feeling they were making a difference and doing their duty. For the person with dementia, these included retaining independence, receiving good quality care and being happy. Dyadic benefits concerned the continuation of the relationship between carer and person with dementia. The findings highlight the need to take a dyadic approach when conceptualising positive experiences in providing care. Further research is needed to understand the role these positive experiences play and to develop interventions. Professionals working with carers should identify and validate these experiences.
dc.description.sponsorship‘Improving the experience of Dementia and Enhancing Active Life: living well with dementia. The IDEAL study’ was funded jointly by the Economic and Social Research Council (ESRC) and the National Institute for Health and Care Research (NIHR) (grant number ES/L001853/2); ‘Improving the experience of Dementia and Enhancing Active Life: a longitudinal perspective on living well with dementia. The IDEAL-2 study’ is funded by the Alzheimer's Society (grant number 348, AS-PR2-16-001)
dc.language.isoenen
dc.rights© The Author(s), 2022. Published by Cambridge University Press. This is an Open Access article, distributed under the terms of the Creative Commons Attribution licence (http://creativecommons.org/licenses/by/4.0/), which permits unrestricted re-use, distribution and reproduction, provided the original article is properly cited.
dc.subjectBenefit-finding
dc.subjectGains
dc.subjectMeaning
dc.subjectQualitative
dc.subjectSatisfaction
dc.subjectUplifts
dc.titlePositive experiences in dementia care-giving: findings from the IDEAL programme
dc.status.refereedYes
dc.date.Accepted2022-04-05
dc.date.application2022-06-29
dc.typeArticle
dc.type.versionPublished version
dc.identifier.doihttps://doi.org/10.1017/S0144686X22000526
dc.rights.licenseCC-BY
dc.date.updated2022-07-01T10:46:25Z
refterms.dateFOA2022-07-04T10:43:24Z
dc.openaccess.statusopenAccess


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