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    Predictors of awareness of functional ability in people with dementia: the contribution of personality, cognition, and neuropsychiatric symptoms. Findings from the IDEAL programme

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    Publication date
    2022
    Author
    Martyr, A.
    Gamble, L.D.
    Nelis, S.M.
    Collins, R.
    Alexander, C.M.
    Morris, R.G.
    Quinn, Catherine
    Pentecost, C.
    Rusted, J.M.
    Victor, C.
    Thom, J.M.
    Matthews, F.E.
    Clare, L.
    Show allShow less
    Keyword
    Activities of daily living
    Alzheimer's disease
    Discrepancy scores
    Insight
    Anosognosia
    Rights
    (c) 2022 The Authors. This is an Open Access article distributed under the Creative Commons CC-BY license (https://creativecommons.org/licenses/by/4.0/)
    Peer-Reviewed
    Yes
    Open Access status
    openAccess
    
    Metadata
    Show full item record
    Abstract
    Introduction: Discrepancy scores reflecting the difference between parallel ratings made by people living with dementia (PwD) in the mild-to-moderate stages and by their informants provide a way to investigate awareness of functional ability in relation to activities of daily living (ADL). Methods: Two measures of ADL (Functional Activities Questionnaire; Dependence Scale) were completed by 1,227 PwD and their informants in the IDEAL cohort study baseline assessment. Self-rated and informant-rated scores were used to calculate discrepancies, which were used as an indicator of awareness of functional ability. Smaller discrepancy scores were considered to reflect greater awareness on the part of PwD. PwD completed questionnaires on depression, personality, comorbidities, neuropsychiatric symptoms, and completed a measure of cognition. Informants provided ratings of stress. Univariable and multiple regressions were used to investigate factors related to ADL discrepancy. Results: A similar pattern of associations were found for both ADL discrepancy scores. Smaller discrepancy scores were associated with higher levels of depression, higher neuroticism, fewer neuropsychiatric symptoms, higher comorbidity, lower carer stress, and receipt of less than 1 hour of care per day from the informant. Discussion/Conclusion: There was a clear pattern of factors that were associated with greater awareness for both measures of functional ability. These factors associated with smaller discrepancy scores could be used to identify PwD who might benefit from targeted interventions to support their independence.
    URI
    http://hdl.handle.net/10454/18981
    Version
    Published version
    Citation
    Martyr A, Gamble LD, Nelis SM et al (2022) Predictors of awareness of functional ability in people with dementia: the contribution of personality, cognition, and neuropsychiatric symptoms. Findings from the IDEAL programme. Dementia and Geriatric Cognitive Disorders. 51: 221-232.
    Link to publisher’s version
    https://doi.org/10.1159/000524607
    Type
    Article
    Collections
    Health Studies Publications

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