Show simple item record

dc.contributor.authorQuinn, Catherine
dc.contributor.authorGamble, L.D.
dc.contributor.authorParker, S.
dc.contributor.authorMartyr, A.
dc.contributor.authorCollins, R.
dc.contributor.authorVictor, C.
dc.contributor.authorDawson, E.
dc.contributor.authorHunt, A.
dc.contributor.authorPentecost, C.
dc.contributor.authorAllan, L.
dc.contributor.authorClare, L.
dc.date.accessioned2022-04-08T16:02:31Z
dc.date.accessioned2022-04-11T15:06:51Z
dc.date.available2022-04-08T16:02:31Z
dc.date.available2022-04-11T15:06:51Z
dc.date.issued2022-05
dc.identifier.citationQuinn C, Gamble LD, Parker S et al (2022) Impact of COVID-19 on carers of people with dementia in the community: Findings from the British IDEAL cohort. International Journal of Geriatric Psychiatry. 37(5): 1-11.
dc.identifier.urihttp://hdl.handle.net/10454/18868
dc.descriptionYes
dc.description.abstractUnpaid carers for people with dementia play a crucial role in society. Emerging evidence suggests the COVID-19 pandemic has negatively impacted on carers. This study sought to explore the impact of the COVID-19 pandemic on carers for community-dwelling people with dementia and compare responses with pre-pandemic data. Data were collected between September 2020 and April 2021 in England and Wales. Carers were identified from the Improving the experience of Dementia and Enhancing Active Life (IDEAL) cohort and data were collected either through the telephone, video conferencing, or an online questionnaire. Responses from 242 carers were compared against benchmark data from the IDEAL cohort collected pre-pandemic. Analyses were conducted for the full sample of carers and spousal/partner carers only. In total 48.8% of carers thought their healthcare needs were negatively affected during the pandemic. Compared with pre-pandemic data carers were more lonely and experienced less life satisfaction. There was little impact on carers' experience of caregiving, although carers felt trapped in their caregiving role. Carers were more optimistic and had higher social contact with relatives. There were changes in the methods carers used for contacting relatives and friends. Most carers coped very or fairly well during the pandemic. There was little difference in the experiences of spousal/partner carers and the full sample. After a long period of providing care under pandemic conditions carers require additional support. This support needs to be focused on alleviating feelings of loneliness and increasing life satisfaction. Services need to consider how to improve access to health care, particularly resuming face-to-face appointments.
dc.description.sponsorshipEconomic and Social Research Council, Alzheimer's Society, National Institute for Health Research.
dc.language.isoenen
dc.rights© 2022 The Authors. International Journal of Geriatric Psychiatry published by John Wiley & Sons Ltd. This is an open access article under the terms of the Creative Commons Attribution License, which permits use, distribution and reproduction in any medium, provided the original work is properly cited.
dc.subjectCaregiver
dc.subjectCoping
dc.subjectLife satisfaction
dc.subjectStress
dc.subjectSupport
dc.subjectWell-being
dc.titleImpact of COVID-19 on carers of people with dementia in the community: Findings from the British IDEAL cohort
dc.status.refereedYes
dc.date.Accepted2022-03-24
dc.date.application2022-04-08
dc.typeArticle
dc.type.versionPublished version
dc.identifier.doihttps://doi.org/10.1002/gps.5708
dc.rights.licenseCC-BY
dc.date.updated2022-04-08T16:02:33Z
refterms.dateFOA2022-04-11T15:07:54Z
dc.openaccess.statusopenAccess
dc.OrcidId0000-0001-9553-853Xen_US


Item file(s)

Thumbnail
Name:
Quinn_C_2022.pdf
Size:
352.4Kb
Format:
PDF
Description:
Published version

This item appears in the following Collection(s)

Show simple item record