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    Moving and handling and managing physiological deterioration of deceased children in hospice cool rooms: practice guidelines for care after death

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    Publication date
    2021
    Author
    Tatterton, Michael J.
    Honour, A.
    Billington, D.
    Kirkby, L.
    Lyon, J.A.
    Lyon, N.
    Gaskin, G.
    Keyword
    Bereavement
    Care after death
    Continuing professional development
    Evidence-based practice
    Family centred care
    Hospice
    Moving and handling
    Palliative care
    Practice development
    Staff support
    Rights
    (c) 2021 RCN. Full-text reproduced in accordance with the publisher's self-archiving policy.
    Peer-Reviewed
    Yes
    Open Access status
    Green
    
    Metadata
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    Abstract
    Children’s hospices provide a range of services for babies, children and young people who have life-shortening conditions, including care after death in specialist ‘cool bedrooms’. Caring for children after death is a challenging area of hospice care, with variation seen within, and between organisations. The study aims to identify current practices and to produce guidelines that promote safe practice in moving and handling and managing physiological deterioration of children after death. An electronic questionnaire was sent to all 54 British children’s hospices; 33 responded (=62% of hospices). Variation in the way in which children’s hospices delivered care after death was identified, in terms of the length of stay, care provision and equipment used, owing to demands of individual families and the experience and confidence of practitioners. Internal variation in practice can lead to practitioner anxiety, and risk-taking when providing care, particularly in the presence of family members. Practice recommendations have been made that reflect the practical demands of caring for a child’s body after death; these have been split into two parts: moving and handling considerations and managing physiological deterioration. These recommendations should be used to support the development of policy and practice, allowing organisations to standardise staff expectations and to support practitioners when caring for children after death.
    URI
    http://hdl.handle.net/10454/18614
    Version
    Accepted manuscript
    Citation
    Tatterton MJ, Honour A, Billington D et al (2021) Moving and handling and managing physiological deterioration of deceased children in hospice cool rooms: practice guidelines for care after death. Nursing Children and Young People. Accepted for publication.
    Type
    Article
    Collections
    Health Studies Publications

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