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dc.contributor.authorHarding, A.J.E.
dc.contributor.authorMorbey, H.
dc.contributor.authorAhmed, F.
dc.contributor.authorOpdebeeck, C.
dc.contributor.authorElvish, R.
dc.contributor.authorLeroi, I.
dc.contributor.authorWilliamson, P.R.
dc.contributor.authorKeady, J.
dc.contributor.authorReilly, Siobhan T.
dc.date.accessioned2021-07-29T17:02:21Z
dc.date.accessioned2021-09-01T14:36:49Z
dc.date.available2021-07-29T17:02:21Z
dc.date.available2021-09-01T14:36:49Z
dc.date.issued2021
dc.identifier.citationHarding AJE, Morbey H, Ahmed F et al (2021) Core outcome set for nonpharmacological community-based interventions for people living with dementia at home: A systematic review of outcome measurement instruments. The Gerontologist. Accepted for Publication.en_US
dc.identifier.urihttp://hdl.handle.net/10454/18582
dc.descriptionYesen_US
dc.description.abstractIt is questionable whether existing outcome measurement instruments (OMIs) in dementia research reflect what key stakeholders' value. We attained consensus from over 300 key stakeholders, including people living with dementia, and identified 13 core outcome items for use in nonpharmacological and community-based interventions for people with dementia living at home. In this systematic review we review OMIs that have previously been used in dementia care research to determine how, or even if, the 13 core outcome items can be measured. We extracted self-reported OMIs from trials, reviews and reports of instrument development. Searches were undertaken in the ALOIS database, Medline, PsycINFO, CINAHL, socINDEX and COSMIN database. We aimed to assess the psychometric properties of OMI items for face validity with the core outcome items, content validity, internal consistency and responsiveness. We held a co-research workshop involving people living with dementia and care partners in order to ratify the findings. In total 347 OMIs were located from 354 sources. Of these 76 OMIs met the inclusion criteria. No OMIs were deemed to have sufficient face validity for the COS items, and no OMIs proceeded to further assessment. The 'best' available OMI is the Engagement and Independence in Dementia Questionnaire (EID-Q). This study provides a practical resource for those designing dementia research trials. Being able to measure the COS items would herald a paradigm shift for dementia research, be responsive to what key stakeholders value and enhance the ability to make comparisons.en_US
dc.description.sponsorshipThis study was funded jointly by the Economic and Social Research Council (ESRC) and the National Institute for Health Research (NIHR). ESRC is part of UK Research and Innovation (UKRI).en_US
dc.language.isoenen_US
dc.relation.isreferencedbyhttps://doi.org/10.1093/geront/gnaa071en_US
dc.rights© The Author(s) 2020. Published by Oxford University Press on behalf of The Gerontological Society of America. This is an Open Access article distributed under the terms of the Creative Commons Attribution License (http://creativecommons.org/licenses/by/4.0/), which permits unrestricted reuse, distribution, and reproduction in any medium, provided the original work is properly cited.en_US
dc.subjectDementiaen_US
dc.subjectAlzheimer's diseaseen_US
dc.subjectMeasurementen_US
dc.subjectOutcomeen_US
dc.subjectCore outcome seten_US
dc.titleA core outcome set for nonpharmacological community-based interventions for people living with dementia at home: A systematic review of outcome measurement instrumentsen_US
dc.status.refereedYesen_US
dc.date.Accepted2020-06-05
dc.date.application2020-06-25
dc.typeArticleen_US
dc.type.versionPublished versionen_US
dc.date.updated2021-07-29T16:02:22Z
refterms.dateFOA2021-09-01T14:37:17Z
dc.openaccess.statusGolden_US


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