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    A core outcome set for nonpharmacological community-based interventions for people living with dementia at home: A systematic review of outcome measurement instruments

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    Reilly_et_al_The_Gerontologist.pdf (332.1Kb)
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    Publication date
    2021-12
    Author
    Harding, A.J.E.
    Morbey, H.
    Ahmed, F.
    Opdebeeck, C.
    Elvish, R.
    Leroi, I.
    Williamson, P.R.
    Keady, J.
    Reilly, Siobhan T.
    Keyword
    Dementia
    Alzheimer's disease
    Measurement
    Outcome
    Core outcome set
    Rights
    © The Author(s) 2020. Published by Oxford University Press on behalf of The Gerontological Society of America. This is an Open Access article distributed under the terms of the Creative Commons Attribution License (http://creativecommons.org/licenses/by/4.0/), which permits unrestricted reuse, distribution, and reproduction in any medium, provided the original work is properly cited.
    Peer-Reviewed
    Yes
    Open Access status
    Gold
    
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    Abstract
    It is questionable whether existing outcome measurement instruments (OMIs) in dementia research reflect what key stakeholders' value. We attained consensus from over 300 key stakeholders, including people living with dementia, and identified 13 core outcome items for use in nonpharmacological and community-based interventions for people with dementia living at home. In this systematic review we review OMIs that have previously been used in dementia care research to determine how, or even if, the 13 core outcome items can be measured. We extracted self-reported OMIs from trials, reviews and reports of instrument development. Searches were undertaken in the ALOIS database, Medline, PsycINFO, CINAHL, socINDEX and COSMIN database. We aimed to assess the psychometric properties of OMI items for face validity with the core outcome items, content validity, internal consistency and responsiveness. We held a co-research workshop involving people living with dementia and care partners in order to ratify the findings. In total 347 OMIs were located from 354 sources. Of these 76 OMIs met the inclusion criteria. No OMIs were deemed to have sufficient face validity for the COS items, and no OMIs proceeded to further assessment. The 'best' available OMI is the Engagement and Independence in Dementia Questionnaire (EID-Q). This study provides a practical resource for those designing dementia research trials. Being able to measure the COS items would herald a paradigm shift for dementia research, be responsive to what key stakeholders value and enhance the ability to make comparisons.
    URI
    http://hdl.handle.net/10454/18582
    Version
    Published version
    Citation
    Harding AJE, Morbey H, Ahmed F et al (2021) Core outcome set for nonpharmacological community-based interventions for people living with dementia at home: A systematic review of outcome measurement instruments. The Gerontologist. 61(8): e435-e448.
    Link to publisher’s version
    https://doi.org/10.1093/geront/gnaa071
    Type
    Article
    Collections
    Health Studies Publications

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