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    What is important to people with dementia living at home? A set of core outcome items for use in the evaluation of non-pharmacological community-based health and social care interventions

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    Reilly_et_al_Age_and_Ageing.pdf (162.5Kb)
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    Publication date
    2020-07
    Author
    Reilly, Siobhan T.
    Harding, A.J.E.
    Morbey, H.
    Ahmed, F.
    Williamson, P.R.
    Swarbrick, C.
    Leroi, I.
    Davies, L.
    Reeves, D.
    Holland, F.
    Hann, M.
    Keady, J.
    Show allShow less
    Keyword
    Core outcome set
    Dementia
    Non-pharmacological
    Psychosocial
    Outcomes
    Older people
    Rights
    © The Author(s) 2020. Published by Oxford University Press on behalf of the British Geriatrics Society. This is an Open Access article distributed under the terms of the Creative Commons Attribution License (http://creativecommons.org/licenses/by/4.0/), which permits unrestricted reuse, distribution, and reproduction in any medium, provided the original work is properly cited.
    Peer-Reviewed
    Yes
    Open Access status
    Gold
    
    Metadata
    Show full item record
    Abstract
    Objectives: Inconsistency in outcome measurement in dementia care trials impedes the comparisons of effectiveness between trials. The key aim of this study is to establish an agreed standardised core outcome set (COS) for use when evaluating non-pharmacological health and social care interventions for people with dementia living at home. Method: We used a mixed-methods research design, including substantive qualitative research with five key stakeholders groups. We consulted with people living with dementia for many aspects of this research. We applied a modified two-round 54 item Delphi approach to attain consensus on core outcomes. The COS was finalised in a face-to-face consensus meeting in 2018. Results: Of the 288 who completed round 1 (21 people living with dementia, 58 care partners, 137 relevant health and social care professionals, 60 researchers, 12 policy makers), 246 completed round 2 (85% response rate). Twenty participants attended the consensus meeting. We reached consensus for the inclusion of 13 outcome items. Conclusion: We identified 13 outcome items which are considered core; many relate to social health. Providing there are adequate measures, measuring these core outcome items will enhance comparisons for effectiveness making trial evidence more useful. The items will provide commissioners and service planners with information on what types of interventions are most likely to be valued highly by people living with dementia.
    URI
    http://hdl.handle.net/10454/18579
    Version
    Published version
    Citation
    Reilly ST, Harding AJE, Morbey H et al (2020) What is important to people with dementia living at home? A set of core outcome items for use in the evaluation of non-pharmacological community-based health and social care interventions. Age and Ageing. 49(4): 664-671.
    Link to publisher’s version
    https://doi.org/10.1093/ageing/afaa015
    Type
    Article
    Collections
    Health Studies Publications

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