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    Sources of emotional challenge for practitioners delivering family centred care after the death of child: an inductive thematic analysis

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    Publication date
    2021
    Author
    Tatterton, Michael J.
    Honour, A.
    Lyon, J.
    Kirkby, L.
    Newbegin, M.
    Webster, J.
    Keyword
    Bereavement
    Care after death
    Hospice
    Palliative care
    Practice development
    Professional issues
    Research Development Fund Publication Prize Award
    Rights
    © 2021 The Authors) Published by Informa UK Limited, trading as Taylor & Francis Group. This is an Open Access article distributed under the terms of the Creative Commons Attribution License (http://creativecommons.org/ licenses/by/4.0/), which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited.
    Peer-Reviewed
    Yes
    Open Access status
    Gold
    
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    Abstract
    Care after the death of a child and support of their bereaved family is an important element of the services offered by children’s hospices in the United Kingdom. The study aims to explore the emotional challenges of those delivering care to families of children in hospice cool rooms. An internet-based questionnaire was sent to all practitioners to explore their perspectives of providing care to bereaved families whilst the child’s body was in the hospice, as well as caring for a child’s body after death. In total, 94.9% (n=56) of staff responded. Two key themes were identified that represent the emotional challenges perceived by staff: the impact of deterioration of a child’s body; and witnessing the acute grief of families. Practitioners seek to provide care that recognises the importance of family and demonstrates family-centred care, as well as supporting families to deal with the changes that occur after death. Organisations can support practitioners to deliver care in cool rooms by providing training and education on anticipating and managing the pathophysiological changes that occur after death as well as training in grief and loss, and how to support a bereaved family.
    URI
    http://hdl.handle.net/10454/18496
    Version
    Published version
    Citation
    Tatterton MJ, Honour A, Lyon J et al (2021) Sources of emotional challenge for practitioners delivering family centred care after the death of child: an inductive thematic analysis. Mortality. Accepted for publication.
    Link to publisher’s version
    https://doi.org/10.1080/13576275.2021.1929897
    Type
    Article
    Notes
    Research Development Fund Publication Prize Award winner, May 2021.
    Collections
    Health Studies Publications

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