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    The prevalence of nonprescription cannabinoid-based medicines in British children's hospices: results of a national survey

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    Publication date
    2019-10
    Author
    Tatterton, Michael J.
    Walker, C.
    Keyword
    Cannabis
    Children
    Family-centred care
    Medicines
    Palliative care
    Regulation
    Peer-Reviewed
    Yes
    
    Metadata
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    Abstract
    Background: Almost 50,000 children and young people are affected by life-limiting conditions in the United Kingdom, around a third of which use children's hospices. Anecdotal evidence suggests that cannabinoid-based medicines (CBMs), specifically cannabis oil (CO), are being used by families with increasing frequency to manage distressing symptoms. The use of most nonprescription CBMs in the United Kingdom remains illegal. Objective: The objective of the study was to identify the prevalence of CO use by families who use children's hospices in the United Kingdom, and the approaches taken by those services to manage it. Design: An electronic survey was sent to each of the 54 children's hospices in the United Kingdom between May and July 2018, comprising 10 questions. Results: Forty children's hospices from across the four countries of the United Kingdom responded to the survey, representing 74% of British children's hospices. About 87.5% of hospices knew of children who use CO therapeutically. Sixty-nine percent of those hospices have received requests to administer CO during an episode of care. Approaches by organizations around CO management varied across the sectors, including arrangements for storage, administration, and recording of its use. Hospices highlighted how the lack of available guidance made decision making more challenging. Only a third of responding organizations routinely questioned families about the use of cannabis when prescribing medicines. Conclusion: CO is used extensively by children who use children's hospices. Despite recognizing the use of CO, many hospices are unable to support it. There is a need for clear guidelines on how hospices should approach the care needs of children, allowing hospices to meet the needs of children who use CO, and families in a safe, consistent, and relevant way, safeguarding all children, families, and professionals within the organization.
    URI
    http://hdl.handle.net/10454/18243
    Version
    No full-text in the repository
    Citation
    Tatterton MJ and Walker C (2019) The prevalence of nonprescription cannabinoid-based medicines in British children's hospices: results of a national survey. Journal of Palliative Medicine. 22(10): 1185-1190.
    Link to publisher’s version
    http://doi.org/10.1089/jpm.2018.0522
    Type
    Article
    Collections
    Health Studies Publications

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