Approaches to community-based palliative care provision by children's hospices in the UK

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Publication date
2019-09-03Author
Tatterton, Michael J.Keyword
Advanced practiceChild health
End of life care
Hospices
Palliative care
Practice development
Professional issues
Peer-Reviewed
YesOpen Access status
closedAccessAccepted for publication
2019-04-05
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The number of children in the UK with life-limiting conditions and the demand for home-based palliative care is increasing. Children's hospices remain a dominant provider of palliative care. This study aimed to determine the approaches taken by children's hospices across the UK in meeting the planned and unplanned health needs of children and their families who receive palliative care at home. In addition, the survey aimed to identify the professional composition of community teams and the number of children and families supported by each service. An internet-based questionnaire survey was sent to all children's hospices in the UK, comprising ten questions exploring the size of the team, geographical areas covered, workforce composition, services offered and approaches to managing unplanned, out of hours care. Responses were received from 14 (26%) of the hospices. A total of 1,618 children and their families were being cared for by these hospices, of whom 825 received care at home. Registered nurses constituted the greatest proportion of staff and were employed by all teams. Care provided at home was broadly split into two categories: planned short breaks and responsive palliative nursing. The latter comprised advance care planning, anticipatory prescribing and active symptom control. Out of hours care was usually offered in the form of telephone support. Models of community-based care are evolving to include nurses practising at specialist and advanced levels, allowing more children with increasingly complex conditions to be cared for at home.Version
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Tatterton MJ (2019) Approaches to community-based palliative care provision by children's hospices in the UK. Nursing children and young people. 31(5).Link to Version of Record
https://doi.org/10.7748/ncyp.2019.e1199Type
Articleae974a485f413a2113503eed53cd6c53
https://doi.org/10.7748/ncyp.2019.e1199