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    An annotated and critical glossary of the terminology of inclusion in healthcare and health research

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    Publication date
    2020-04
    Author
    Islam, Shahid
    Small, Neil A.
    Keyword
    Community engagement
    Community involvement
    Participation
    Community development
    Community empowerment
    Community readiness
    Co-production
    Healthcare
    Key terms
    Health research
    Glossary
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    Rights
    © 2020 The Author(s). This article is licensed under a Creative Commons Attribution 4.0 International License.
    Peer-Reviewed
    yes
    
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    Abstract
    The importance of including members of the public has been accorded a significant position in health planning, service delivery and research. But this position masks a lack of clarity about terms that are used. This paper identifies terms that are in common use in the lexicon of community based involvement and engagement in health with the intention of clarifying meaning and thus reducing ambiguity. We define and distinguish between key terms related to inclusion, we consider the terminology attached to community processes and to the challenges of inclusion and we engage with the strengths and weaknesses of the commonly used metaphor of "a ladder of participation". We wish to contribute to the clear communication of intentions, challenges and achievements in pursuing varied forms of inclusion in health.
    URI
    http://hdl.handle.net/10454/18207
    Version
    Published version
    Citation
    Islam S and Small N (2020) An annotated and critical glossary of the terminology of inclusion in healthcare and health research. Research Involvement And Engagement, 6 (1): 14.
    Link to publisher’s version
    https://doi.org/10.1186/s40900-020-00186-6
    Type
    Article
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    Health Studies Publications

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