An annotated and critical glossary of the terminology of inclusion in healthcare and health research

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2020-04Keyword
Community engagementCommunity involvement
Participation
Community development
Community empowerment
Community readiness
Co-production
Healthcare
Key terms
Health research
Glossary
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© 2020 The Author(s). This article is licensed under a Creative Commons Attribution 4.0 International License.Peer-Reviewed
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The importance of including members of the public has been accorded a significant position in health planning, service delivery and research. But this position masks a lack of clarity about terms that are used. This paper identifies terms that are in common use in the lexicon of community based involvement and engagement in health with the intention of clarifying meaning and thus reducing ambiguity. We define and distinguish between key terms related to inclusion, we consider the terminology attached to community processes and to the challenges of inclusion and we engage with the strengths and weaknesses of the commonly used metaphor of "a ladder of participation". We wish to contribute to the clear communication of intentions, challenges and achievements in pursuing varied forms of inclusion in health.Version
Published versionCitation
Islam S and Small N (2020) An annotated and critical glossary of the terminology of inclusion in healthcare and health research. Research Involvement And Engagement, 6 (1): 14.Link to publisher’s version
https://doi.org/10.1186/s40900-020-00186-6Type
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