An annotated and critical glossary of the terminology of inclusion in healthcare and health research
View/
Main article (714.4Kb)
Download
Publication date
2020-04Keyword
Community engagementCommunity involvement
Participation
Community development
Community empowerment
Community readiness
Co-production
Healthcare
Key terms
Health researchGlossary
Rights
© 2020 The Author(s). This article is licensed under a Creative Commons Attribution 4.0 International License.Peer-Reviewed
yesMetadata
Show full item recordAbstract
The importance of including members of the public has been accorded a significant position in health planning, service delivery and research. But this position masks a lack of clarity about terms that are used. This paper identifies terms that are in common use in the lexicon of community based involvement and engagement in health with the intention of clarifying meaning and thus reducing ambiguity. We define and distinguish between key terms related to inclusion, we consider the terminology attached to community processes and to the challenges of inclusion and we engage with the strengths and weaknesses of the commonly used metaphor of "a ladder of participation". We wish to contribute to the clear communication of intentions, challenges and achievements in pursuing varied forms of inclusion in health.Version
Published versionCitation
Islam S and Small N (2020) An annotated and critical glossary of the terminology of inclusion in healthcare and health research. Research Involvement And Engagement, 6 (1): 14.Link to publisher’s version
https://doi.org/10.1186/s40900-020-00186-6Type
ArticleCollections
Related items
Showing items related by title, author, creator and subject.
-
An evaluation of an intervention designed to improve the evidence-based supply of non-prescription medicines from community pharmaciesOBJECTIVES: The aims of this study were to conduct the proof of concept study and to develop and evaluate an educational intervention that promotes the evidence-based supply of non-prescription medicines (NPMs). METHOD: An educational intervention was delivered to pharmacy assistants and pharmacists in three pharmacies in England. The intervention included the provision of summaries of evidence for the treatment of four minor ailments and resulted in the preparation of evidence-based portfolios for the treatment of the following ailments: athlete's foot, cough, nasal congestion and period pain. The effect of the intervention was evaluated using a combination of direct overt observation, vignettes, self-reported behaviour and interviews. KEY FINDINGS: Evaluation data were collected from the three pharmacies. Data were derived from 3 pharmacists and 13 assistants, of whom 10 (3 pharmacists; 7 assistants) attended the training event. Comparing pre- and post-intervention practice, 8/11 (pre-) versus 5/6 (post-) observed, 46/80 versus 62/80 vignette and 25/30 versus 39/40 self-reported recommendations were evidence based. Prior to the intervention, 3/16 participants understood the role of evidence regarding the supply of NPMs compared with 16/16 post-intervention. Participants reported relying upon experiential knowledge to inform their decision making prior to the educational intervention. Thereafter, the participants reported using evidence to a greater extent. Barriers and facilitators for evidence-based practice were also identified. CONCLUSION: A one-off educational intervention increased participants' self-reported awareness and potential application of evidence to inform their supply of NPMs. Further research is needed to assess the effectiveness, long-term impact, generalisability and cost-effectiveness of this intervention for a wider range of common conditions.
-
Decentralisation and the Management of Ethnic Conflict: A Case Study of the Republic of Macedonia.This thesis considers the extent to which decentralisation in the Republic of Macedonia between 2005 and 2012 has been effective in reducing ethnic inequalities that exacerbate social divisions and can lead to conflict. Guided by the concept of horizontal inequalities, it identifies the factors which influenced the decision to devolve responsibilities to the municipalities after 2001. It examines the particular institutional design that Macedonian decentralisation took, and demonstrates how its use of local power-sharing mechanisms was intended to address the concerns of the Albanian and Macedonian communities simultaneously. This thesis takes an integrative approach to studying the political, administrative, and fiscal dimensions of decentralisation¿s implementation, and considers whether the reform has indeed contributed to the reduction of inequalities between Macedonia¿s ethnic groups. Where decentralisation¿s potential has not been reached, obstacles to its successful implementation are identified. While decentralisation alone may be unable to address all of the grievances raised by the Albanian community prior to 2001, this thesis argues that the reform has the potential to address many of the horizontal inequalities that were responsible for raising inter-ethnic tensions during the 1990s. However, decentralisation in Macedonia between 2005 and 2012 has only been partial, and advances in the administrative and political aspects of the reform have been undermined by limited progress in its fiscal dimension. Attempts to solve self-determination conflicts through decentralisation will fail if local self-governance exists only in form but not in substance.
-
Optimising productivity, quality and efficiency in community nursing.By 2014 the NHS is expected to make �21 billion in efficiency savings and increase productivity by 6% per annum, while maintaining or improving the quality of care. Given that the cost of the 1.7 million strong workforce represents 60% of the NHS budget, changes are likely. This context of innovation and cost-effectiveness has resulted in an ever greater emphasis to fully engage and support community nursing.
