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    'We’re All Getting Older You See, and Things Do Change, Don’t They?’ An Ethnographic Study of Disruption and Continuity in the Daily Lives of Couples Living with Dementia and Co-morbidities

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    Author
    De Waal, Denise
    Supervisor
    Downs, Murna G.
    Small, Neil A.
    Keyword
    Dementia
    Co-morbidities
    Spouse care
    Ethnography
    Habitus
    Identity
    Continuity
    Medical anthropology
    Rights
    Creative Commons License
    The University of Bradford theses are licenced under a Creative Commons Licence.
    Institution
    University of Bradford
    Department
    Department of Dementia Studies
    Awarded
    2018
    
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    Abstract
    Most people with dementia live in the community with a family member, commonly a spouse. Together they engage in identity redefinition to maintain continuity. Many people living with dementia also have co-morbidities. The aim of this study was to provide a better understanding of the influence of co-morbidities on the lived experience of couples and to provide knowledge to improve services. This had not been researched before. Drawing on the dialectic relationship between the body, habitus, environment and common sense from Bourdieu’s theory of practice (1977; 1990) combined with identity theory as described by Burke and Stetts (2009) I conducted an ethnographic study with five couples over a six-month period. The resulting data were analysed using a framework approach and are presented using case studies to illustrate key points. Drawing up on the data I developed an identity perspective which provides a better understanding of these couples’ daily life experiences taking into consideration the contextuality of people’s multiple identities, experiences, care and support needs and their interaction with the environment and community. My findings illustrate how people with dementia and co-morbidities and their spouses negotiate their identity in daily life in order to continue their daily life routine and cope with health conditions. Furthermore, these identity negotiations influence the acceptance of the diagnoses of dementia, the access to care, services and information and the experience of dementia, stigma and co-morbidities in daily life. Implications include a presentation of the limitations of current concepts of embodied selfhood and the Aging in Place policy for people with dementia. It points to the potential of the identity perspective to shape policy, services and care practice consistent with couples’ lived experience and their needs and preferences.
    URI
    http://hdl.handle.net/10454/17313
    Type
    Thesis
    Qualification name
    PhD
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