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    The relationship between perceived functional difficulties and the ability to live well with mild-to-moderate dementia: Findings from the IDEAL programme.

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    Publication date
    2019
    Author
    Martyr, A.
    Nelis, S.M.
    Quinn, Catherine
    Rusted, J.M.
    Morris, R.G.
    Clare, L.
    Keyword
    Activities
    Daily living
    Alzheimer's disease
    Carer stress
    Depression
    Quality of life
    Functional ability
    Functional impairment
    Rights
    © 2019 The Authors. Published by John Wiley & Sons Ltd. This is an open access article under the terms of the Creative Commons Attribution License, which permits use, distribution and reproduction in any medium, provided the original work is properly cited.
    Peer-Reviewed
    yes
    
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    Abstract
    Objectives: The objectives of the study are to investigate how different levels of functional ability relate to quality of life, well‐being, and satisfaction with life, conceptualised as reflecting capability to “live well” in people with dementia. Methods/design: Participants were 1496 people with mild‐to‐moderate dementia and 1188 informants who completed baseline assessments in the Improving the experience of Dementia and Enhancing Active Life (IDEAL) cohort study. Total selfrated and informant‐rated scores on the Functional Activities Questionnaire were split into six ability levels to monitor how poorer functioning impacts the ability to live well. We also investigated the potential influence of sociodemographic and diagnostic variables, depression, cognition, and carer stress. Results: Multivariate multiple regression models found that people with dementia who had the greatest functional impairment according to self‐ratings and informant ratings had poorer living well scores than those with the least functional impairment. Sociodemographic and diagnostic factors and cognition had little impact on effect sizes. For self‐ratings, depression attenuated the relationship between functional ability and living well, whereas carer stress attenuated informant ratings. Conclusions: People with dementia with the least functional impairments had greater capability to live well than those with the most functional impairment. Even subtle perceived difficulties in functional ability had a detrimental effect on the ability of people with dementia to live well. Depression in people with dementia and carer stress in informants influenced these associations, and therefore, these factors should be routinely included in future research studies and clinical assessments.
    URI
    http://hdl.handle.net/10454/17107
    Version
    Published version
    Citation
    Martyr A, Nelis SM, Quinn C, Rusted JM, Morris RG and Clare L (2019) The relationship between perceived functional difficulties and the ability to live well with mild-to-moderate dementia: Findings from the IDEAL programme. International Journal of Geriatric Psychiatry. Accepted for publication.
    Link to publisher’s version
    https://doi.org/10.1002/gps.5128
    Type
    Article
    Collections
    Health Studies Publications

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