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    Influence of positive and negative dimensions of dementia caregiving on caregiver well-being and satisfaction with life: Findings from the IDEAL study

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    Publication date
    2019-08
    Author
    Quinn, Catherine
    Nelis, S.M.
    Martyr, A.
    Victor, C.
    Morris, R.G.
    Keyword
    Competence
    Gains
    Stress
    Role-captivity
    Positive aspects of caregiving
    Quality of life
    Research Development Fund Publication Prize Award
    Rights
    (c) 2019 The Authors. This is an Open Access article distributed under the Creative Commons CC-BY license (http://creativecommons.org/licenses/by/4.0/)
    Peer-Reviewed
    Yes
    
    Metadata
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    Abstract
    The aim of this study was to identify the potential impact of positive and negative dimensions of caregiving on caregiver well-being and satisfaction with life (SwL). This study used time-point one data from the Improving the experience of Dementia and Enhancing Active Life (also known as IDEAL)cohort study that involved 1,283 informal caregivers of people in the mild-to-moderate stages of dementia recruited from 29 sites within Great Britain. Multivariate linear regression modeling was used to investigate the associations between positive dimensions of caregiving (measured by caregiving competence and perceptions of positive aspects of caregiving), negative dimensions of caregiving (measured by caregiving stress and role captivity), and caregiver well-being and SwL. Lower well-being was associated with low caregiving competence (–13.77; 95% confidence interval [CI]:–16.67, –10.87), perceiving fewer positive aspects of caregiving (–7.67; 95% CI:–10.26, –5.07), high caregiving stress (–24.45; 95% CI:–26.94, –21.96), and high role captivity (–15.61; 95% CI:–18.33, –12.89). Lower SwL was associated with low caregiving competence (–4.61; 95% CI:–5.57, –3.66), perceiving fewer positive aspects of caregiving (–3.09; 95% CI:–3.94, –2.25), high caregiving stress (–7.88; 95% CI:–8.71, –7.06), and high role captivity (–6.41; 95% CI:–7.27, –5.54). When these four measures were combined within the same model, only positive aspects of caregiving and caregiving stress retained independent associations with well-being and SwL. Both positive and negative dimensions of caregiving were associated with caregiver well-being and SwL. Psychological therapies and interventions need to consider not only the negative aspects of caregiving but also positive caregiving experiences and their implications for caregiver well-being and SwL.
    URI
    http://hdl.handle.net/10454/16982
    Version
    Accepted manuscript
    Citation
    Quinn C, Nelis SM, Martyr A et al (2019) Influence of positive and negative dimensions of dementia caregiving on caregiver well-being and satisfaction with life: Findings from the IDEAL study. The American Journal of Geriatric Psychiatry. 27(8): 838-848.
    Link to publisher’s version
    https://doi.org/10.1016/j.jagp.2019.02.005
    Type
    Article
    Notes
    The IDEAL data will be deposited with the UK Data Archive upon completion of the study. Details on how the data can be accessed will be made available on the project website www.idealproject.org.uk.
    Research Development Fund Publication Prize Award winner, February 2019.
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