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dc.contributor.authorHillman, A.*
dc.contributor.authorJones, I.R.*
dc.contributor.authorQuinn, Catherine*
dc.contributor.authorNelis, S.M.*
dc.contributor.authorClare, L.*
dc.date.accessioned2018-12-17T15:54:12Z
dc.date.accessioned2019-01-08T12:45:31Z
dc.date.available2018-12-17T15:54:12Z
dc.date.available2019-01-08T12:45:31Z
dc.date.issued2018-06
dc.identifier.citationHillman A, Jones IR, Quinn C et al (2018) Dualities of dementia illness narratives and their role in a narrative economy. Sociology of Health and Illness. 40(5): 874-891.en_US
dc.identifier.urihttp://hdl.handle.net/10454/16728
dc.descriptionYes
dc.description.abstractThe concept of 'narrative economies' has recently been proposed as a set of exchange relationships that, through biography and story-telling, facilitate access to resources and act as a source of value. We utilise this concept to inform our analysis of 18 qualitative interviews with five people with dementia and four informal carers. Our participants are members of a pre-existing group of dementia advocates, representing the voices of those living with the condition. There are a growing number of people in the early stages of dementia - like our participants - being called upon to account for their experience, as a means of developing a politicised 'collective illness identity'. These interviews present an opportunity to study a group of people who are actively involved in speaking as, and for, people with dementia. Four themes emerged from the data: becoming a voice of or for people with dementia; biographical reinforcement; responsibilisation; and resistance. These themes illustrate the ways in which people with dementia participate in their own identity construction and, as representatives of those living with dementia, they also illustrate the ways in which illness narratives produce material and symbolic value.en_US
dc.language.isoenen_US
dc.relation.isreferencedbyhttps://doi.org/10.1111/1467-9566.12729en_US
dc.rights(c) 2018 The Authors. This is an Open Access article distributed under the Creative Commons CC-BY license (http://creativecommons.org/licenses/by/4.0/)
dc.subjectAlzheimer's diseaseen_US
dc.subjectAdvocacyen_US
dc.subjectCarersen_US
dc.subjectIllness narrativesen_US
dc.subjectLiving wellen_US
dc.subjectNarrative economiesen_US
dc.titleDualities of dementia illness narratives and their role in a narrative economyen_US
dc.status.refereedYesen_US
dc.typeArticleen_US
dc.type.versionPublished versionen_US
dc.date.updated2018-12-17T15:54:14Z
refterms.dateFOA2019-01-08T12:45:42Z


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