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    Illness representations in caregivers of people with dementia

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    Quinn_Jones_Clare_2017.pdf (574.3Kb)
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    Publication date
    2017-05
    Author
    Quinn, Catherine
    Jones, I.R.
    Clare, L.
    Keyword
    Alzheimer's disease
    Adjustment
    Cause
    Common sense model
    Qualitative methodology
    Rights
    (c) 2017 Taylor & Francis. This is an Accepted Manuscript of an article published by Taylor & Francis in Aging and Mental Health in May 2017, available online: https://doi.org/10.1080/13607863.2015.1128882
    Peer-Reviewed
    Yes
    
    Metadata
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    Abstract
    Illness representations shape responses to illness experienced by the self or by others. The illness representations held by family members of those with long-term conditions such as dementia influence their understanding of what is happening to the person and how they respond and provide support. The aim of this study is to explore components of illness representations (label, cause, control and timeline) in caregivers of people with dementia. This was an exploratory study; the data reported came from the Memory Impairment and Dementia Awareness Study (MIDAS). Data from semi-structured interviews with 50 caregivers of people with dementia were analysed using content analysis. The majority of caregivers gave accounts that appeared to endorse a medical/diagnostic label, although many used different terms interchangeably. Caregivers differentiated between direct causes and contributory factors, but the predominant explanation was that dementia had a biological cause. Other perceived causes were hereditary factors, ageing, lifestyle, life events and environmental factors. A limited number of caregivers were able to identify things that people with dementia could do to help manage the condition, while others thought nothing could be done. There were varying views about the efficacy of medication. In terms of timeline, there was considerable uncertainty about how dementia would progress over time. The extent of uncertainty about the cause, timeline and controllability of dementia indicated that caregivers need information on these areas. Tailored information and support taking account of caregivers' existing representations may be most beneficial.
    URI
    http://hdl.handle.net/10454/16725
    Version
    Accepted manuscript
    Citation
    Quinn C, Jones IR and Claire L (2017) Illness representations in caregivers of people with dementia. Aging and Mental Health. 21(5): 553-561.
    Link to publisher’s version
    https://doi.org/10.1080/13607863.2015.1128882
    Type
    Article
    Collections
    Health Studies Publications

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