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    The ANGELA Project: Improving diagnosis and post-diagnostic support for younger people with dementia and their families/supporters

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    Stamou_FPOP_Bulletin.pdf (414.5Kb)
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    Publication date
    2018-04
    Author
    Stamou, Vasileios
    La Fontaine Papadopoulos, Jenny H.
    Oyebode, Jan R.
    Jones, B.
    Gage, H.
    O'Malley, M.
    Parkes, J.
    Carter, J.
    Keyword
    ANGELA Project
    Dementia
    Younger people
    Supporters
    Rights
    Reproduced with permission from FPOP Bulletin © The British Psychological Society 2018.
    Peer-Reviewed
    Yes
    
    Metadata
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    Abstract
    Objectives: Younger people with dementia face significant challenges in gaining access to age- and needs-appropriate support. In this paper, we tell the story so far, of the ANGELA Research Project, which seeks to develop guidance to improve the ‘dementia journey’ for younger people with dementia and their families/supporters. Design: Our story is one of a research group aiming to conduct clinically relevant research to achieve positive changes for younger people with dementia. Our research journey will last 3 years and is now almost one year in. In this article, we aim to convey some of the decisions we have made to date, and what lies ahead for a successful implementation. Methods: So far, we have been forming as a research group and turning our initial ideas into plans that will work in the real world. Our methods for ensuring all elements of the project work well have involved internal and external aspects and processes. These have included involvement with and feedback from experts-by-experience and an advisory panel. Results: To date we have generated a protocol for all the key elements and have launched the Improving Support and Service Use Survey; a national survey gathering evidence from younger people with dementia and their supporters. In this article, we present how we aim to move forward to bring positive real-life changes to the lives of those affected by young onset dementia. Conclusions: There is a cautiously happy ending to this first phase, as we are now collecting data. However, the judgement of whether the Angela Project is a success overall will depend on whether it makes a difference at its conclusion to younger people with dementia and their supporters.
    URI
    http://hdl.handle.net/10454/15621
    Version
    Accepted Manuscript
    Citation
    Stamou V, La Fontaine J, Oyebode J et al (2018) The ANGELA Project: improving diagnosis and post-diagnostic support for younger people with dementia and their families/supporters. FPOP Bulletin. 142: April 2018.
    Link to publisher’s version
    https://shop.bps.org.uk/publications/publication-by-series/fpop-bulletin.html
    Type
    Article
    Collections
    Health Studies Publications

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