BRADFORD SCHOLARS

    • Sign in
    View Item 
    •   Bradford Scholars
    • Health Studies
    • Health Studies Publications
    • View Item
    •   Bradford Scholars
    • Health Studies
    • Health Studies Publications
    • View Item
    JavaScript is disabled for your browser. Some features of this site may not work without it.

    Browse

    All of Bradford ScholarsCommunitiesAuthorsTitlesSubjectsPublication DateThis CollectionAuthorsTitlesSubjectsPublication Date

    My Account

    Sign in

    HELP

    Bradford Scholars FAQsCopyright Fact SheetPolicies Fact SheetDeposit Terms and ConditionsDigital Preservation Policy

    Statistics

    Most Popular ItemsStatistics by CountryMost Popular Authors

    CoMPASs: IOn programme (Care Of Memory Problems in Advanced Stages of dementia: Improving Our Knowledge): protocol for a mixed methods study

    • CSV
    • RefMan
    • EndNote
    • BibTex
    • RefWorks
    Thumbnail
    View/Open
    harrington_et_al_2017.pdf (391.6Kb)
    Download
    Publication date
    2012-01-01
    Author
    Jones, L.
    Harrington, J.
    Scott, S.
    Davis, S.
    Lord, Kathryn
    Vickerstaff, V.
    Round, J.
    Candy, B.
    Sampson, E.L.
    Keyword
    Dementia; End of life care; United Kingdom
    Rights
    © 2012 The Authors. This is an open-access article distributed under the terms of the Creative Commons CC-BY-NC license, which permits use, distribution, and reproduction in any medium, provided the original work is properly cited, the use is noncommercial and is otherwise in compliance with the license (http://creativecommons.org/licenses/by-nc/2.0/%20and%20http:/creativecommons.org/licenses/by-nc/2.0/legalcode)
    Peer-Reviewed
    Yes
    
    Metadata
    Show full item record
    Abstract
    Introduction: Approximately 700 000 people in the UK have dementia, rising to 1.2 million by 2050; one-third of people aged over 65 will die with dementia. Good end-of-life care is often neglected, and detailed UK-based research on symptom burden and needs is lacking. Our project examines these issues from multiple perspectives using a rigorous and innovative design, collecting data which will inform the development of pragmatic interventions to improve care. Methods and analysis: To define in detail symptom burden, service provision and factors affecting care pathways we shall use mixed methods: prospective cohort studies of people with advanced dementia and their carers; workshops and interactive interviews with health professionals and carers, and a workshop with people with early stage dementia. Interim analyses of cohort data will inform new scenarios for workshops and interviews. Final analysis will include cohort demographics, the symptom burden and health service use over the follow-up period. We shall explore the level and nature of unmet needs, describing how comfort and quality of life change over time and differences between those living in care homes and those remaining in their own homes. Data from workshops and interviews will be analysed for thematic content assisted by textual grouping software. Findings will inform the development of a complex intervention in the next phase of the research programme. Ethics and dissemination: Ethical approval was granted by National Health Service ethical committees for studies involving people with dementia and carers (REC refs. 12/EE/0003; 12/LO/0346), and by university ethics committee for work with healthcare professionals (REC ref. 3578/001). We shall present our findings at conferences, and in peer-reviewed journals, prepare detailed reports for organisations involved with end-of-life care and dementia, publicising results on the Marie Curie website. A summary of the research will be provided to participants if requested.
    URI
    http://hdl.handle.net/10454/12165
    Version
    Published version
    Citation
    Jones L, Harrington J, Scott S et al (2012) CoMPASs: IOn programme (Care Of Memory Problems in Advanced Stages of dementia: Improving Our Knowledge): protocol for a mixed methods study. BMJ Open. 2(6): e002265.
    Link to publisher’s version
    https://doi.org/10.1136/bmjopen-2012-002265
    Type
    Article
    Collections
    Health Studies Publications

    entitlement

     
    DSpace software (copyright © 2002 - 2023)  DuraSpace
    Quick Guide | Contact Us
    Open Repository is a service operated by 
    Atmire NV
     

    Export search results

    The export option will allow you to export the current search results of the entered query to a file. Different formats are available for download. To export the items, click on the button corresponding with the preferred download format.

    By default, clicking on the export buttons will result in a download of the allowed maximum amount of items.

    To select a subset of the search results, click "Selective Export" button and make a selection of the items you want to export. The amount of items that can be exported at once is similarly restricted as the full export.

    After making a selection, click one of the export format buttons. The amount of items that will be exported is indicated in the bubble next to export format.