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dc.contributor.authorGove, Dianne M.*
dc.contributor.authorDiaz-Ponce, A.*
dc.contributor.authorGeorges, J.*
dc.contributor.authorMoniz-Cook, E.*
dc.contributor.authorMountain, Gail*
dc.contributor.authorChattat, R.*
dc.contributor.authorØksnebjerg, L.*
dc.contributor.authorThe European Working Group of People with Dementia*
dc.date.accessioned2017-06-06T15:43:12Z
dc.date.available2017-06-06T15:43:12Z
dc.date.issued2017
dc.identifier.citationGove D, Diaz-Ponce A, Georges J et al (2017) Alzheimer Europe’s position on involving people with dementia in research through PPI (patient and public involvement) Aging and Mental Health. In press.en_US
dc.identifier.urihttp://hdl.handle.net/10454/12131
dc.descriptionYesen_US
dc.description.abstractThis paper reflects Alzheimer Europe’s position on PPI (patient and public involvement) in the context of dementia research and highlights some of the challenges and potential risks and benefits associated with such meaningful involvement. The paper was drafted by Alzheimer Europe in collaboration with members of INTERDEM and the European Working Group of People with Dementia. It has been formally adopted by the Board of Alzheimer Europe and endorsed by the Board of INTERDEM and by the JPND working group ‘Dementia Outcome Measures - Charting New Territory’. Alzheimer Europe is keen to promote the involvement of people with dementia in research, not only as participants but also in the context of PPI, by generating ideas for research, advising researchers, being involved in consultations and being directly involved in research activities. This position paper is in keeping with this objective. Topics covered include, amongst others, planning involvement, establishing roles and responsibilities, training and support, managing information and input from PPI, recognising the contribution of people with dementia involved in research in this way, promoting and protecting the rights and well-being of people with dementia, training and support, and promoting an inclusive approach and the necessary infrastructure for PPI in dementia research.en_US
dc.description.sponsorshipEuropean Union's Health Programme (2014-2020), grant number 707934. This work received funding under an operating grant from the European Union's Health Programme (2014-2020), grant number 707934.en_US
dc.description.sponsorshipEuropean Union's Health Programme (2014–2020), grant number 707934.en
dc.language.isoenen_US
dc.relation.isreferencedbyhttps://doi.org/10.1080/13607863.2017.1317334en_US
dc.rights© 2017 The Authors. This is an Open Access article distributed under the terms of the Creative Commons CC-BY license (http://creativecommons.org/licenses/by-nc-nd/4.0/)en_US
dc.subjectPPI; People with dementia; Research; Position paperen_US
dc.titleAlzheimer Europe's position on involving people with dementia in research through PPI (patient and public involvement)en_US
dc.status.refereedYesen_US
dc.date.Accepted2017-04-02
dc.date.application2017-05-17
dc.typeArticleen_US
dc.type.versionPublished versionen_US
refterms.dateFOA2018-07-25T13:36:21Z


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