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dc.contributor.authorSprange, K.*
dc.contributor.authorMountain, Gail*
dc.contributor.authorShortland, K.*
dc.contributor.authorCraig, C.*
dc.contributor.authorBlackburn, D.*
dc.contributor.authorBowie, P.*
dc.contributor.authorHarkness, K.*
dc.contributor.authorSpencer, M.*
dc.date.accessioned2016-12-21T16:49:08Z
dc.date.available2016-12-21T16:49:08Z
dc.date.issued2015-11-30
dc.identifier.citationSprange K, Mountain GA, Shortland K et al (2015) Journeying through Dementia, a community-based self-management intervention for people aged 65 years and over: a feasibility study to inform a future trial. Pilot and Feasibility Studies. 1(1): 42.
dc.identifier.urihttp://hdl.handle.net/10454/11026
dc.descriptionYes
dc.description.abstractA study to determine the feasibility of conducting a future population-based trial into a selfmanagement intervention for community-living adults with early stage dementia included evaluation of intervention content and modes of delivery, staffing requirements, recruitment methods and the utility and usability of patient reported outcomes. Methods: Participants identified through memory clinics in one city took part in an intervention called ‘Journeying through Dementia’. The 12-week programme incorporating four individual sessions with one of the facilitators encourages participants to engage in discussion and activities related to health and well-being positioning them as the expert enabling long-term behavioural change. Participants (n = 10) and their nominated carers (n = 7) were all asked to complete selected outcomes at baseline, 8 weeks (participants only) and post intervention and invited to comment on their usability. All participants and carers were qualitatively interviewed before intervention delivery about their expectations and participants; nominated carers and facilitators were all interviewed after cessation about their experiences. Results: The manualised intervention and modes of delivery proved acceptable to participants and carers. Reported benefits included increased confidence and self-efficacy, engagement in new or lapsed activities and reengagement in fun and friendships. People with dementia and carers were able to self-complete all outcome measures, but time required to complete the measures is a key factor. Strategies for recruitment need to include direct contact within 24–48 h post invitation to the study. Analysis of data on the primary outcome did not reveal any trends. Facilitators found the training and support to be appropriate and helpful. Conclusions: The tailored intervention reportedly met the needs of all participants. The study confirmed the need for careful identification and application of patient-reported outcome measures. Outcomes to measure some dimensions of reported benefit are not available.
dc.description.sponsorshipThe study was supported and funded by the Medical Research Council (MRC) Lifelong Health and Wellbeing (LLHW) programme; grant number G1001406, ISRCTN is 67209155.
dc.language.isoenen
dc.rights© 2015 Sprange et al. Open Access This article is distributed under the terms of the Creative Commons Attribution 4.0 International License (http://creativecommons.org/licenses/by/4.0/), which permits unrestricted use, distribution, and reproduction in any medium, provided you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons license, and indicate if changes were made. The Creative Commons Public Domain Dedication waiver (http://creativecommons.org/publicdomain/zero/1.0/) applies to the data made available in this article, unless otherwise stated.
dc.subjectDementia
dc.subjectSelf-management
dc.subjectQuality of life
dc.subjectCommunity
dc.subjectManualised intervention
dc.titleJourneying through Dementia, a community-based self-management intervention for people aged 65 years and over: a feasibility study to inform a future trial
dc.status.refereedYes
dc.date.Accepted2015-11-24
dc.typeArticle
dc.type.versionPublished version
dc.identifier.doihttps://doi.org/10.1186/s40814-015-0039-6
refterms.dateFOA2018-07-25T15:51:57Z


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