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International consensus on quality indicators for comprehensive assessment of dementia in young adults using a modified e-Delphi approach
O'Malley, M. Parkes, J. La Fontaine Papadopoulos, Jenny H. Carter, J.
O'Malley, M.
Parkes, J.
La Fontaine Papadopoulos, Jenny H.
Carter, J.
Publication Date
2020-11
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© 2020 The Authors.This is an Open Access article under the Creative Commons CC-BY license (https://creativecommons.org/licenses/by/4.0/)
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openAccess
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2020-06-20
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Abstract
To develop guidance for clinicians about essential elements that can support clinical decision-making in the diagnostic workup of young onset dementia. Methods/design: Three iterations of a modified e-Delphi consensus survey comprising 23 international expert clinicians specialising in diagnosis of young onset dementia. Outcome measures: A priori consensus was pre-defined as 80% of experts ranking statements in the upper threshold on a seven-point Likert scale that ranged from “not important at all” to “absolutely essential” to diagnosis. Results: 80% consensus was reached on 48 statements that were rated as “absolutely essential” or “very important” to a comprehensive assessment of dementia in a younger adult. In order to inform a subsequent audit of clinical records in which compliance with these statements was assessed, the statements were divided into a Minimum Standard, (consisting of the 15 statements voted by all experts as being “absolutely essential” or “very important”) and a Gold Standard where 48 statements were voted by 80% of the experts as being “absolutely essential” or “very important”. The experts’ response rate across the three rounds was 91.3%. Conclusion: A Minimum Standard and Gold Standard have been created for the diagnostic workup of young onset dementia. The standards provide a clinically useful tool for decision-making, particularly for generalists and those with less experience in the field. The standards will be used to inform a UK case note audit of recently diagnosed patients with young onset dementia.
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Citation
O'Malley M, Parkes J, Stamou V et al (2020) International consensus on quality indicators for comprehensive assessment of dementia in young adults using a modified e-Delphi approach. International Journal of Geriatric Psychiatry. 35(11): 1309-1321.
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