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Caring beyond capacity during the COVID-19 pandemic: resilience and family carers of people with dementia from the IDEAL cohort

Stapley, S.
; 
Pentecost, C.
; 
Collins, R.
; ; 
Dawson, E.
; 
Thom, J.M.
; 
Clare, L.
Publication Date
2024-05
End of Embargo
Supervisor
Keywords
Alzheimer's, Caregiving, COVID-19, Qualitative
Rights
� Policy Press 2023. This is a post-peer-review, pre-copy edited version of an article published in International Journal of Care and Caring. The definitive publisher-authenticated version Stapley S, Pentecost C, Collins R et al (2024) 'Caring beyond capacity' during the COVID-19 pandemic: resilience and family carers of people with dementia from the IDEAL cohort. International Journal of Care and Caring. 8(2): 246-263. is available online at: https://doi.org/10.1332/239788221X16819328227036.
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Peer-Reviewed
Yes
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embargoedAccess
Accepted for publication
2023-05
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Department
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Health Studies Publications
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Abstract
Family carers of people with dementia have reported increased caring demands during the COVID-19 pandemic. The aim of this qualitative study was to explore seven family carers’ accounts of dementia caregiving one year into the COVID-19 pandemic in England in relation to carer resilience. Themes described the complex challenges of caring during the pandemic, with interviewees burned out and ‘caring beyond capacity’ due to unmet needs within the caring role, therein highlighting the limitations of building individual resilience only. Timely practical support for carers is essential to protect their well-being and to ward against the potential consequences of carer burnout.
URI
http://hdl.handle.net/10454/19573
Version
Accepted manuscript
Citation
Stapley S, Pentecost C, Collins R et al (2024) 'Caring beyond capacity' during the COVID-19 pandemic: resilience and family carers of people with dementia from the IDEAL cohort. International Journal of Care and Caring. 8(2): 246-263.
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Link to published version
Link to Version of Record
https://doi.org/10.1332/239788221X16819328227036
Type
Article
Qualification name
Notes