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Patient and public involvement in designing and conducting doctoral research: the whys and the hows
Tomlinson, Justine Cheong, V-Lin Khan, Sarah
Tomlinson, Justine
Cheong, V-Lin
Khan, Sarah
Publication Date
2019-08
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© The Author(s). 2019 Open Access. This article is distributed under the terms of the Creative Commons Attribution 4.0 International License (http://creativecommons.org/licenses/by/4.0/), which permits unrestricted use, distribution, and reproduction in any medium, provided you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons license, and indicate if changes were made. The Creative Commons Public Domain Dedication waiver (http://creativecommons.org/publicdomain/zero/1.0/) applies to the data made available in this article, unless otherwise stated.
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openAccess
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2019-07-22
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Abstract
Public and patient involvement (PPI) has been shown to have a positive impact on health and social care research. However, adequate examples describing how to operationalise effective PPI, especially in doctoral studies, are lacking. Hence, doctoral researchers new to research, or those with limited experience, can be discouraged from facilitating PPI in their research. This paper aims to describe and discuss in detail the approaches used by four doctoral researchers to incorporate PPI at different stages of their research studies from study design to disseminating findings.
We aim to inform other doctoral researchers about the challenges and limitations relating to PPI that we faced. Through these, we share pragmatic recommendations for facilitating PPI during doctoral studies.
The description of four case studies demonstrated that PPI could be incorporated at various stages during doctoral research. This has had a beneficial impact on our research study progression, researcher self-esteem and lastly, helped alleviate researcher isolation during doctoral studies.
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Published version
Citation
Tomlinson J, Medlinskiene K, Cheong V et al (2019) Patient and public involvement in designing and conducting doctoral research: the whys and the hows. Research Involvement and Engagement. 5: 23.
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Notes
Research Development Fund Publication Prize Award winner, July 2019.