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Exploring the potential for secondary uses of Dementia Care Mapping (DCM) data for improving the quality of dementia care
Khalid, Shehla Surr, Claire A. Small, Neil A.
Khalid, Shehla
Surr, Claire A.
Small, Neil A.
Publication Date
2019-04
End of Embargo
Supervisor
Rights
The final, definitive version of this paper has been published in Dementia, vol 18/issue 3 by SAGE Publications Ltd, All rights reserved. © The Author(s). Reprints and permissions: sagepub.co.uk/journalsPermissions.nav
Peer-Reviewed
Yes
Open Access status
openAccess
Accepted for publication
2017-02-05
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Department
Awarded
Embargo end date
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Abstract
The reuse of existing datasets to identify mechanisms for improving healthcare quality has been widely encouraged. There has been limited application within dementia care. Dementia Care Mapping (DCM) is an observational tool in widespread use, predominantly to assess and improve quality of care in single organisations. DCM data has the potential to be used for secondary purposes to improve quality of care. However, its suitability for such use requires careful evaluation. This study conducted in-depth interviews with 29 DCM users to identify issues, concerns and challenges regarding the secondary use of DCM data. Data was analysed using modified Grounded Theory. Major themes identified included the need to collect complimentary contextual data in addition to DCM data, to reassure users regarding ethical issues associated with storage and reuse of care related data and the need to assess and specify data quality for any data that might be available for secondary analysis.
Version
Accepted manuscript
Citation
Khalid S, Surr C, Neagu CD et al (2019) Exploring the potential for secondary uses of Dementia Care Mapping (DCM) data for improving the quality of dementia care. Dementia. 18(3): 1060-1074.
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Article