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Experience-based co-design - Adapting the method for a researcher-initiated study in a multi-site setting
Raynor, D.K. Ismail, Hanif Blenkinsopp, Alison Armitage, Gerry R.
Raynor, D.K.
Ismail, Hanif
Blenkinsopp, Alison
Armitage, Gerry R.
Publication Date
2020-06
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© 2020 The Authors Health Expectations published by John Wiley & Sons Ltd.
This is an open access article under the terms of the Creative Commons Attribution License (https://creativecommons.org/licenses/by/4.0/), which permits use, distribution and reproduction in any medium, provided the original work is properly cited.
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openAccess
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2019-12-31
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Abstract
Background: Experience-based co-design (EBCD) brings patients and staff together to co-design services. It is normally conducted in one organization which initiates and implements the process. We used the traditional EBCD method with a number of adaptations as part of a larger research study in the British National Health Service.Methods: The primary aim was to assess the feasibility and acceptability of conduct-ing research-initiated EBCD, to enhance intervention development prior to testing. As well as embedding the method in a research study, there were 3 further key adap-tations: (a) working across primary and secondary care sectors, (b) working on multi-ple sites and (c) incorporating theory-informed analysis.Results: We recruited four sites (covering both primary and secondary care) and, on each site, conducted the initial traditional EBCD meetings, with separate staff and patient groups—followed by a single joint patient-staff event, where four priority areas for co-design were agreed. This event was driven by theory-informed analysis, as well as the traditional trigger film of patient experiences. Each site worked on one priority area, and the four co-design groups met over 2-3 months to design prototype tools. A second joint event was held (not usually undertaken in single-site EBCD) where they shared and compared outputs. The research team combined elements of these outputs to create an intervention, now being tested in a cluster randomized controlled trial.Conclusions: EBCD can be successfully adapted for use across an entire patient pathway with multiple organizations and as part of a research process to identify an intervention for subsequent testing in a randomized trial. Our pragmatic approach used the patient experience to identify areas for improvement and co-designed an intervention which directly reflected patient priorities.
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Citation
Raynor DK, Ismail H, Blenkinsopp A et al (2020) Experience-based co-design - Adapting the method for a researcher-initiated study in a multi-site setting. Health Expectations. 23(3): 562-570.
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