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Navigating the COVID-19 pandemic two years on: experiences of carers of people with dementia from the British IDEAL cohort

Collins, R.
; 
Dawson, E.
; 
Pentecost, C.
; 
Stapley, S.
; ; 
Charlwood, C.
; 
Allan, L.
; 
Victor, C.
; 
Clare, L.
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Publication Date
2024-11
End of Embargo
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Keywords
COVID-19, Qualitative, Care services, Quality of life
Rights
© Policy Press 2023. This is a post-peer-review, pre-copy edited version of an article published in International Journal of Care and Caring. The definitive publisher-authenticated version [Collins R, Dawson E, Pentecost C et al (2024) Navigating the COVID-19 pandemic two years on: experiences of carers of people with dementia from the British IDEAL cohort. International Journal of Care and Caring. 8(4): 600-621.] is available online at: https://doi.org/10.1332/239788223X16893442145108
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Peer-Reviewed
Yes
Open Access status
openAccess
Accepted for publication
2023-08
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Health Studies Publications
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Abstract
We explored carers experiences during the COVID-19 pandemic in England to identify long-term impacts and implications, and to suggest future support for caregivers. Data were collected during COVID-19 rapid response studies (IDEAL-CDI; INCLUDE) from carers participating in a British longitudinal cohort study (IDEAL). Semi-structured interview data were compared to their accounts from previous interviews conducted during the first 18 months of the pandemic. There was indication of some return to pre-pandemic lifestyles but without appropriate support carers risked reaching crisis point. Evidence points to a need for assessment and management of support needs to ensure well-being and sustainable dementia caregiving.
URI
http://hdl.handle.net/10454/19574
Version
Accepted manuscript
Citation
Collins R, Dawson E, Pentecost C et al (2024) Navigating the COVID-19 pandemic two years on: experiences of carers of people with dementia from the British IDEAL cohort. International Journal of Care and Caring. 8(4): 600-621.
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Link to Version of Record
https://doi.org/10.1332/239788223X16893442145108
Type
Article
Qualification name
Notes