Publication

Patients' experiences with home parenteral nutrition: a literature review

Wong, C.
; 
Lucas, Beverley J.
; 
Wood, Diana
Publication Date
2015
End of Embargo
Supervisor
Keywords
Literature review, Home parenteral nutrition, HPN, Patient experience
Rights
Peer-Reviewed
Yes
Open Access status
closedAccess
closedAccess
Accepted for publication
2014-08-05
Institution
Department
Awarded
Embargo end date
Collections
Health Studies Publications
Life Sciences Publications
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Abstract
Aim The aim of this review is to summarise the literature relating to patients’ experiences with home parenteral nutrition (HPN). Method This literature review is based on searches of CINAHL, PubMed, Web of Knowledge and Web of Science for articles published between 1970 and 2013. Additional studies were included from Department of Health publications, NICE clinical guidance, UK patient support group with interests in HPN or intestinal failure (IF). Results Patients with severe IF have been successfully treated with HPN since the 1970s. Early published studies evaluated clinical outcomes such as catheter-related infections, metabolic complications, thrombosis of the catheterised vein and liver impairment. Since the 1980s questionnaire studies were used to evaluate the quality of life (QoL) of patients treated with HPN. These early studies used QoL assessment tools which were not validated for patients treated with HPN. Internationally, there were published qualitative research studies which explored the experiences of patients treated with HPN. Conclusions The long-term outcome of patients treated with HPN continues to attract research interest. The review of the literature did not identify any published qualitative studies on the experiences of patients treated with HPN in the UK, suggesting a gap in the research. The UK National Health Service advocates a patient-centred approach for service design and delivery in primary and secondary care. This literature review has highlighted opportunities for qualitative research into the experiences of patients living with HPN to achieve better understanding and awareness of the rehabilitation of these patients
URI
http://hdl.handle.net/10454/10165
Version
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Citation
Wong C, Lucas BJ and Wood D (2015) Patients’ experiences with home parenteral nutrition: a literature review. European Journal of Hospital Pharmacy. 22(1): 51-55.
Link to publisher’s version
Link to published version
Link to Version of Record
https://doi.org/ 10.1136/ejhpharm-2014-000481
 https://doi.org/ 10.1136/ejhpharm-2014-000481
Type
Article
Qualification name
Notes