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Impact of COVID-19 on 'living well' with mild-to-moderate dementia in the community: findings from the IDEAL cohort
Clare, L. Martyr, A. Gamble, L.D. Pentecost, C. Collins, R. Dawson, E. Hunt, A. Parker, S. Allan, L. Burns, A.
Clare, L.
Martyr, A.
Gamble, L.D.
Pentecost, C.
Collins, R.
Dawson, E.
Hunt, A.
Parker, S.
Allan, L.
Burns, A.
Publication Date
2022
End of Embargo
Supervisor
Rights
© 2022 IOS Press. Reproduced in accordance with the publisher's self-archiving policy.
The final publication is available at IOS Press through https://doi.org/10.3233/JAD-215095.
Peer-Reviewed
Yes
Open Access status
openAccess
Accepted for publication
2021-10-27
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Department
Awarded
Embargo end date
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Additional title
Abstract
.
Negative impacts of the COVID-19 pandemic on people with dementia have been widely-documented, but most studies have relied on carer reports and few have compared responses to information collected before the pandemic.
Objective.
We aimed to explore the impact of the pandemic on community-dwelling individuals with mild-to-moderate dementia and compare responses with pre-pandemic data.
Methods.
During the second wave of the pandemic we conducted structured telephone interviews with 173 people with dementia and 242 carers acting as informants, all of whom had previously participated in the IDEAL cohort. Where possible we benchmarked responses against pre-pandemic data.
Results.
Significant perceived negative impacts were identified in cognitive and functional skills and ability to engage in self-care and manage everyday activities, along with increased levels of loneliness and discontinuity in sense of self and a decline in perceived capability to ‘live well’. Compared to pre-pandemic data there were lower levels of pain, depression and anxiety, higher levels of optimism, and better satisfaction with family support. There was little impact on physical health, mood, social connections and relationships, or perceptions of neighbourhood characteristics.
Conclusion.
Efforts to mitigate negative impacts of pandemic-related restrictions and restore quality of life could focus on reablement to address the effects on participation in everyday activities, creating opportunities for social contact to reduce loneliness, and personalised planning to reconnect people with their pre-COVID selves. Such efforts may build on the resilience demonstrated by people with dementia and carers in coping with the pandemic.
Version
Accepted manuscript
Citation
Clare L, Martyr A, Gamble LD et al (2022) Impact of COVID-19 on 'living well' with mild-to-moderate dementia in the community: findings from the IDEAL cohort. Journal of Alzheimer's disease. 85(2): 925-940.
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Article